恶性黑色素瘤-发掘-检测-治疗超仔细攻略
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">为了能清晰记录全过程,我决定趁着没忘记马上写下来。<span style="color: black;">亦</span><span style="color: black;">期盼</span><span style="color: black;">能够</span><span style="color: black;">帮忙</span>到这个病的<span style="color: black;">有些</span><span style="color: black;">病人</span>。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">今年春节前,我妈<span style="color: black;">忽然</span>告诉我她脚底长了一个黑痣,挺大的,她自己去<span style="color: black;">周边</span>医院做了<span style="color: black;">检测</span>,说是不太好,<span style="color: black;">举荐</span>去肿瘤医院/协和医院治疗。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">春节后,<span style="color: black;">咱们</span>马上挂了肿瘤医院的专家号,但<span style="color: black;">因为</span>专家不是专门看皮肤癌的专家,以及肿瘤医院<span style="color: black;">针对</span>皮肤癌<span style="color: black;">好似</span>不是<span style="color: black;">尤其</span>强项,当时说让去其他皮肤癌比较强的医院去看。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我后来就挂到北大医院的皮肤科,但距离就诊要等<span style="color: black;">1星期</span>。这<span style="color: black;">1星期</span>很煎熬,<span style="color: black;">由于</span>我听说恶性黑色素瘤是发展<span style="color: black;">火速</span>的,前期就会转移。只要这个痣一天不切,它就像个炸弹<span style="color: black;">同样</span>可能会<span style="color: black;">引起</span>转移。<span style="color: black;">况且</span>我妈说这个痣<span style="color: black;">已然</span>好几个月了,我不<span style="color: black;">晓得</span>这算<span style="color: black;">初期</span>还是晚期。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我还是很着急,一方面在网上看说吃维生素D<span style="color: black;">能够</span><span style="color: black;">控制</span>恶性黑色素瘤扩散,赶紧给她买了一盒吃,另一方面,我又挂了肿瘤医院的皮肤科早几天的号,我想<span style="color: black;">瞧瞧</span>是不是能快点排到手术。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">肿瘤医院当时的<span style="color: black;">大夫</span>态度很<span style="color: black;">欠好</span>,直接当我妈面说,这个很严重,到底多严重你们自己上网查下。我当时就很生气,我觉得他一点同理心都<span style="color: black;">无</span>。<span style="color: black;">而后</span>他开了<span style="color: black;">检测</span>,和一种<span style="color: black;">能够</span>延迟肿瘤发展的针剂(但肿瘤医院不给打,要自己找医院打),我问他什么时候<span style="color: black;">能够</span>手术,他说要等很久。这个答复让我<span style="color: black;">最后</span>决定不在肿瘤医院治疗。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我让我妈去打他开的针剂,<span style="color: black;">由于</span>我<span style="color: black;">晓得</span>在北大医院看病手术肯定<span style="color: black;">亦</span>要排队,在手术前,<span style="color: black;">咱们</span>能做的<span style="color: black;">便是</span><span style="color: black;">尽可能</span><span style="color: black;">掌控</span>肿瘤的发展。<span style="color: black;">没</span>论是吃维生素d还是打这个针,聊<span style="color: black;">强过</span><span style="color: black;">没</span>。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">在北大医院,很幸运地碰到了李<span style="color: black;">大夫</span>,其实找他看病的大<span style="color: black;">都数</span>都是这个病。他看到我妈那个痣的面积和诊断书,<span style="color: black;">亦</span>不太看好,单独跟我说,可能<span style="color: black;">已然</span>转移了,让我做好心理准备。<span style="color: black;">况且</span>他帮忙安排了最快的<span style="color: black;">检测</span>和手术。我真的真的非常感谢他。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">他安排的治疗如下,我清晰地列出来:</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">第1</span>项<span style="color: black;">检测</span>:肿瘤标志物。结果:正常。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">第二项<span style="color: black;">检测</span>+手术:切掉脚下的痣,做活检。要取边缘多个点活检,以确定<span style="color: black;">是不是</span>切除干净。结果:一次切除干净。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">第三项:PET CT<span style="color: black;">检测</span>,确认远处脏器<span style="color: black;">是不是</span>有转移,这个<span style="color: black;">检测</span>全自费比较贵,7000多,但<span style="color: black;">大夫</span>说,这个<span style="color: black;">检测</span>可能<span style="color: black;">检测</span>不到<span style="color: black;">少于</span>5mm的转移,只是参考。结果:<span style="color: black;">没</span>转移。其实到这步,我就安心<span style="color: black;">有些</span>了。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">第四项:<span style="color: black;">由于</span>是右脚底黑色素瘤,要做右腿根的前哨淋巴结定位、切除、活检。做这步是看淋巴<span style="color: black;">是不是</span>有转移。<span style="color: black;">况且</span>李<span style="color: black;">大夫</span>很负责的安排了双重<span style="color: black;">检测</span>,一个是抽取淋巴组织液检测(怕切下来淋巴有误),一个是切下来活检。结果:<span style="color: black;">没</span>转移。ps<span style="color: black;">倘若</span>淋巴有转移,<span style="color: black;">必须</span>清除大腿根所有淋巴,但<span style="color: black;">针对</span><span style="color: black;">病人</span>日后生活体验有影响,<span style="color: black;">例如</span>会腿部浮肿。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">基本到这个<span style="color: black;">周期</span><span style="color: black;">能够</span>确定,暂时排除了转移。且患处<span style="color: black;">已然</span>切除,保持半年复查就行。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">但以<span style="color: black;">初期</span>肿瘤面积和深度来看,这个结果<span style="color: black;">没</span>疑是反转。我都以为<span style="color: black;">最少</span><span style="color: black;">已然</span>转移到淋巴了。但结果,真是不幸中的万幸。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">这次历经两个月,我大致<span style="color: black;">认识</span>了这个病的一个<span style="color: black;">检测</span>治疗流程,我<span style="color: black;">期盼</span>能分享给<span style="color: black;">必须</span><span style="color: black;">帮忙</span>的人。<span style="color: black;">期盼</span><span style="color: black;">大众</span>早点筛查,早点痊愈。</p>
“BS”(鄙视的缩写)
页:
[1]