4zhvml8 发表于 2024-6-27 19:27:37

临终病房里,读懂“生”的故事


    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">潮<span style="color: black;">资讯</span>客户端 记者 林晓晖</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">“<span style="color: black;">咱们</span>把老、弱、死都医学化了,认为它们只是一个<span style="color: black;">必须</span>克服的临床问题,然而,在人近<span style="color: black;">傍晚</span>之时,所需的<span style="color: black;">不仅</span>是医药,还有生活,有<span style="color: black;">道理</span>的生活。”</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">这句话出自哈佛医学院外科副教授阿图•葛文德<span style="color: black;">大夫</span>所写的《最好的告别》,它或许是许多人对“<span style="color: black;">安定</span>疗护”的最初启蒙。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://q1.itc.cn/q_70/images03/20240329/9f3c991ef750413d815535f42888f277.jpeg" style="width: 50%; margin-bottom: 20px;"></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">图源 视觉中国</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">从理念、学科的引入到技术、服务的<span style="color: black;">提高</span>,再到如今<span style="color: black;">创立</span>更为规范的标准,<span style="color: black;">安定</span>疗护(过去多<span style="color: black;">叫作</span>“临终关怀”)在中国走过近三十年的发展历程。<span style="color: black;">近期</span>,省卫生健康委遴选浙江医院等20家医疗<span style="color: black;">公司</span>的<span style="color: black;">安定</span>疗护病区<span style="color: black;">做为</span>全省“标准化<span style="color: black;">安定</span>疗护病区”。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">咱们</span>走进浙江医院的<span style="color: black;">安定</span>疗护病区,<span style="color: black;">不仅</span>观察医疗技术<span style="color: black;">针对</span>生命末期<span style="color: black;">病人</span><span style="color: black;">存活</span>质量的<span style="color: black;">保证</span>,<span style="color: black;">亦</span>体察<span style="color: black;">暗地里</span>更为厚重的人文关怀。在<span style="color: black;">这儿</span>,温暖的故事<span style="color: black;">每日</span>都在<span style="color: black;">出现</span>。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">01</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">遗愿<span style="color: black;">名单</span>里的冰淇淋</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">安定</span>疗护病房和<span style="color: black;">咱们</span>想象中不太<span style="color: black;">同样</span>。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">它不是被沉重和阴郁<span style="color: black;">包围</span>,只听得见医疗仪器的滴答声。相反,<span style="color: black;">这儿</span>常常传出音乐、<span style="color: black;">交流</span>和笑声。就在有风君前往浙江医院医疗照护病房的这天,医院的医护、志愿者和社工<span style="color: black;">一块</span>给一位98岁的老奶奶过了生日。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">护士李燕芳告诉我,哪怕<span style="color: black;">步行到</span>了生命的尽头,这些<span style="color: black;">病人</span><span style="color: black;">亦</span>享有一个人普通人的正常生活的权利。“<span style="color: black;">然则</span><span style="color: black;">非常多</span>时候,<span style="color: black;">她们</span>被看作‘更弱势’的一方,<span style="color: black;">做为</span>‘普通人’的需求及平等交流的必要性都被淡化了。”</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://q8.itc.cn/q_70/images03/20240329/c7800dbfd63f4740b032607611ea8a7c.jpeg" style="width: 50%; margin-bottom: 20px;"></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">标准化<span style="color: black;">安定</span>疗护病区走廊。浙江医院 供图</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">她始终记得,那一个“一口冰淇淋”的愿望。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">那是一个才30多岁的癌症<span style="color: black;">病人</span>,身体<span style="color: black;">状况</span><span style="color: black;">起始</span>恶化,入住病房的时候早已<span style="color: black;">没</span>法正常<span style="color: black;">摄食</span>,她常常觉得口干,之前医护人员<span style="color: black;">一般</span>让她含一小块冰块解渴。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">李燕芳说,后来她在这位<span style="color: black;">病人</span>的遗愿<span style="color: black;">名单</span>里看到了“冰淇淋”这一条,她很好奇,和<span style="color: black;">病人</span>交流过后才<span style="color: black;">晓得</span><span style="color: black;">由于</span>病痛<span style="color: black;">熬煎</span><span style="color: black;">数年</span>,这个爱吃甜的姑娘<span style="color: black;">已然</span>很久很久<span style="color: black;">无</span>吃上冰淇淋了。“很想很想再吃一口,哪怕尝一下味道<span style="color: black;">亦</span>好。”</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">次日</span>,医护们来查房时,特地带上了一支冰淇淋。“她很惊喜,看到的时候,眼睛亮了一下。”李燕芳说,最后她只舔了两口,其实她吃不下东西,但哪怕只是闻一下、看一下,这种心愿的满足,都可能对病人是莫大的慰藉,这股熟悉的甜味<span style="color: black;">亦</span>能短暂“治愈”她。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">哪怕是简单的愿望,在<span style="color: black;">这儿</span>都得到同等的尊重。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://q4.itc.cn/q_70/images03/20240329/977aa3ecfa5541d19f234090ed475e01.jpeg" style="width: 50%; margin-bottom: 20px;"></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">图源 视觉中国</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">02</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">“<span style="color: black;">无</span>什么比<span style="color: black;">陪同</span>更<span style="color: black;">要紧</span>”</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">躺在病床上的时光,除了<span style="color: black;">病人</span>自己,没人<span style="color: black;">晓得</span>有多么漫长。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">每日</span>照护生命终末期的<span style="color: black;">病人</span>,浙江医院医疗照护病房护士长项巧珍有更直接的感触:“<span style="color: black;">病人</span><span style="color: black;">无</span>机会说,说了<span style="color: black;">亦</span><span style="color: black;">无</span>人听,会加剧孤独感。<span style="color: black;">因此</span>,在<span style="color: black;">安定</span>疗护病房里的工作很大一部分是倾听和<span style="color: black;">陪同</span>。”</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">在<span style="color: black;">这儿</span>的<span style="color: black;">病人</span>大<span style="color: black;">都数</span>是老年人。儿女、其他亲属很难做到全程陪护,<span style="color: black;">她们</span>一个人的时候,护士还有志愿者常常陪<span style="color: black;">她们</span>聊聊天。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">一位爷爷是个老知识分子,总<span style="color: black;">爱好</span>和<span style="color: black;">她们</span>分享当年亲历的历史故事;</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">一位<span style="color: black;">病人</span>是<span style="color: black;">青年</span>的母亲,志愿者<span style="color: black;">帮忙</span>她录像、写信、录音、做手工……为<span style="color: black;">孩儿</span>在<span style="color: black;">将来</span>大学毕业、结婚生子等<span style="color: black;">要紧</span>时刻,留下<span style="color: black;">有些</span>礼物,这是实实在在的支持与照顾。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">……</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://q6.itc.cn/q_70/images03/20240329/2c212f2262684b498f5d20403bec578e.jpeg" style="width: 50%; margin-bottom: 20px;"></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">标准化<span style="color: black;">安定</span>疗护病区病房。浙江医院 供图</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">安定</span>疗护的病区走廊里,常常坐满了身心疲惫的家属。站在生与死的边缘线旁,<span style="color: black;">必须</span><span style="color: black;">安抚</span>的不仅是承受着病痛<span style="color: black;">熬煎</span>的<span style="color: black;">病人</span>,家人的<span style="color: black;">心情</span><span style="color: black;">亦</span><span style="color: black;">必须</span>关照和疏导。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">她们</span>很难<span style="color: black;">这里</span>境况下和亲人倾诉<span style="color: black;">懊恼</span>,<span style="color: black;">心情</span>找不到出口,而简单的<span style="color: black;">陪同</span>与倾听在<span style="color: black;">此时</span>候,可能恰好是最宝贵的东西。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">不久前,84岁的董奶奶送走了相濡以沫61年的老伴,<span style="color: black;">起始</span>独自一人生活。“家里太安静了。”<span style="color: black;">本来</span>身体硬朗的董奶奶<span style="color: black;">控制</span>不住地<span style="color: black;">心情</span>低落,还经历了突发心梗和骨折。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">后来,在项巧珍的<span style="color: black;">意见</span>下,大学生志愿者们每周都去看望董奶奶,陪她聊天,听她讲当年夫妇二人<span style="color: black;">一块</span>参加抗美援朝的故事,还把故事整理成册。志愿者来访<span style="color: black;">作为</span>了奶奶每周最期待的事,项巧珍说,亲人<span style="color: black;">逝去</span>的痛苦不可避免,而<span style="color: black;">此刻</span>的董奶奶正在慢慢走出这条灰暗的甬道。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://q6.itc.cn/q_70/images03/20240329/7fcb2cebf7be4d109823321bc627b5a8.jpeg" style="width: 50%; margin-bottom: 20px;"></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">图源 视觉中国</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">03</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">这是一种双向治愈</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">李女士<span style="color: black;">选取</span><span style="color: black;">作为</span>一名<span style="color: black;">安定</span>疗护志愿者是<span style="color: black;">由于</span>过世的母亲。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">不久前,母亲<span style="color: black;">由于</span>肺癌去世,从确诊到<span style="color: black;">逝去</span>不到<span style="color: black;">一月</span>的时间。“一切都太<span style="color: black;">忽然</span>了,在她生命的末期,<span style="color: black;">咱们</span>都不<span style="color: black;">晓得</span><span style="color: black;">怎样</span>照顾她。”李女士说,刚<span style="color: black;">起始</span>自己<span style="color: black;">亦</span><span style="color: black;">没</span>法接受,<span style="color: black;">因此呢</span>想到去<span style="color: black;">帮忙</span><span style="color: black;">一样</span>处境的人们,“<span style="color: black;">咱们</span>更能互相理解彼此。”</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">在接受几个月的专业培训后,几乎每<span style="color: black;">1星期</span>,她都会跟随志愿者队伍来到<span style="color: black;">安定</span>疗护病区。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">她经历过<span style="color: black;">病人</span>从一<span style="color: black;">起始</span>排斥、抵触到最后<span style="color: black;">逐步</span>敞开心扉,<span style="color: black;">亦</span>和<span style="color: black;">病人</span>家属彼此惺惺相惜,互相鼓励。她记得遇到过一个印象极其深刻的<span style="color: black;">病人</span>,很<span style="color: black;">青年</span>,<span style="color: black;">然则</span><span style="color: black;">已然</span>癌症末期,病情经常反复。“一<span style="color: black;">起始</span><span style="color: black;">咱们</span>交流都很小心<span style="color: black;">小心</span>,<span style="color: black;">然则</span>没想到他<span style="color: black;">尤其</span><span style="color: black;">阳光</span>,他<span style="color: black;">乃至</span>还会关心<span style="color: black;">咱们</span>、关心其他<span style="color: black;">病人</span>的<span style="color: black;">状况</span>,<span style="color: black;">大众</span>都被他感染了。”李女士说,她才感受到,“这是一个相互治愈的过程”。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://q0.itc.cn/q_70/images03/20240329/43f99c1167624d2f876ebfe780faf5b3.jpeg" style="width: 50%; margin-bottom: 20px;"></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">一家医院<span style="color: black;">安定</span>为<span style="color: black;">病人</span><span style="color: black;">供给</span><span style="color: black;">安定</span>疗护服务,图源 新华社</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">“我很难形容和病人之间<span style="color: black;">创立</span>起来的这种情感,<span style="color: black;">她们</span>对<span style="color: black;">咱们</span>的信任连我自己都觉得很神奇”。在<span style="color: black;">安定</span>疗护病房,虽然<span style="color: black;">每日</span>做的工作都是送终,但<span style="color: black;">病人</span>家属<span style="color: black;">乃至</span>在好几年后还会想起<span style="color: black;">大众</span>,发自内心地表达感谢。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">当人们深度走进每一个<span style="color: black;">病人</span>的生命故事,跟<span style="color: black;">她们</span>的家人<span style="color: black;">一块</span>面对死亡困境时,或许对生命的议题能有更深切的理解。<span style="color: black;">咱们</span>在<span style="color: black;">帮忙</span><span style="color: black;">她们</span>,其实,<span style="color: black;">她们</span>是在用自己的生命故事教会<span style="color: black;">咱们</span>怎么去面对死亡,面对生活。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">“转载请注明出处”<a style="color: black;"><span style="color: black;">返回<span style="color: black;">外链论坛:http://www.fok120.com/</span>,查看<span style="color: black;">更加多</span></span></a></p>

    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">责任编辑:网友投稿</span></p>




nqkk58 发表于 2024-10-8 18:50:28

我们有着相似的经历,你的感受我深有体会。

1fy07h 发表于 2024-10-11 11:47:48

感谢你的精彩评论,为我的思绪打开了新的窗口。
页: [1]
查看完整版本: 临终病房里,读懂“生”的故事