一位中晚期食道癌病人的看病经历
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我爸,2019年9月<span style="color: black;">经过</span>胃镜查出食道癌,<span style="color: black;">详细</span><span style="color: black;">状况</span>可阅读我之前的<span style="color: black;">文案</span><a style="color: black;"><span style="color: black;">https://</span><span style="color: black;">zhuanlan.zhihu.com/p/85</span><span style="color: black;">779089?utm_psn=1701009562772234240</span></a>今天的<span style="color: black;">专题</span>是食道癌<span style="color: black;">看病</span><span style="color: black;">选取</span>的经历,以及自己的一点<span style="color: black;">意见</span>,<span style="color: black;">期盼</span><span style="color: black;">能够</span>帮到<span style="color: black;">必须</span>的人。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">确诊医院为重庆西南医院,重庆最大的综合性三甲医院,<span style="color: black;">次日</span>又去重庆新桥医院挂了一个专家号问诊,体验不太好,<span style="color: black;">详细</span>就不细说了。那几天我<span style="color: black;">经过</span>群里问(想进群的自己私信我联系方式)、网上查,<span style="color: black;">认识</span>到四川华西医院胸外科比较权威(当然北京的医院更权威哈,<span style="color: black;">由于</span><span style="color: black;">咱们</span>是重庆人,<span style="color: black;">因此</span>首选的西南片区),正好我当时在成都,就让<span style="color: black;">她们</span>过来了。<span style="color: black;">经过</span>华医通网上咨询了一个肿瘤科<span style="color: black;">大夫</span>,<span style="color: black;">举荐</span>我三位食道癌方面的胸外科专家,我挑了其中一位挂了号,<span style="color: black;">次日</span>就去门诊了。号要得急的话是<span style="color: black;">欠好</span>挂的,自己找找<span style="color: black;">途径</span>。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">面诊后做了一系列<span style="color: black;">检测</span>,<span style="color: black;">检测</span>不是一天做完的,大概两三天,查完后就回家等结果,等<span style="color: black;">通告</span>入院了。运气比较好,不到半个月就等到了入院<span style="color: black;">通告</span>,运气<span style="color: black;">欠好</span>一两个月都有可能。(<span style="color: black;">检测</span>前咨询下分诊护士先查什么再查什么,<span style="color: black;">由于</span>有些<span style="color: black;">检测</span>先后<span style="color: black;">次序</span>很<span style="color: black;">要紧</span>。)</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我个人觉得<span style="color: black;">能够</span>先随便挂个普通号,先把术前<span style="color: black;">检测</span>都做了,<span style="color: black;">通常</span><span style="color: black;">便是</span>上下腹部CT、颈部彩超以及PET-CT和骨扫描等,拿着结果再去挂专家号,<span style="color: black;">亦</span><span style="color: black;">能够</span>问下护士大概多久出结果,<span style="color: black;">根据</span>结果出来的那两天提前挂号(更<span style="color: black;">举荐</span><span style="color: black;">这般</span>),<span style="color: black;">例如</span>所有结果大概1.1号能拿到,那就提前挂1.1号后面两天的号,<span style="color: black;">这般</span>比结果出来再去挂号更节约时间,后面有什么突发<span style="color: black;">状况</span><span style="color: black;">亦</span>不至于慌乱,<span style="color: black;">没</span>论是争取尽快治疗还是缓解病人/家人的焦虑心理都有好处。挂胸外科,看能否手术,<span style="color: black;">能够</span>把肿瘤科<span style="color: black;">亦</span>一并挂上,<span style="color: black;">以避免</span>后面<span style="color: black;">不可</span>手术再去挂肿瘤科又<span style="color: black;">必须</span>等很久,毕竟大医院的号太难挂到,用不上就提前退号,退不了<span style="color: black;">亦</span><span style="color: black;">没关系</span>,这个时候一个挂号费真的不算啥,只是可能会浪费一个号源,哎。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我爸手术比较成功,几天就出院了,<span style="color: black;">时期</span>抽了一次肺积水,少的话<span style="color: black;">能够</span>不抽,<span style="color: black;">咱们</span>是压迫<span style="color: black;">导致</span><span style="color: black;">呼气</span>有点困难,出院后几天半夜<span style="color: black;">亦</span>经常<span style="color: black;">呼气</span>困难,还腰痛,整夜没法睡,把<span style="color: black;">咱们</span>紧张的,后面慢慢好了。接着<span style="color: black;">思虑</span>放化疗的问题,毕竟有一处淋巴结转移。本来同步放化疗是最好的,我爸比较瘦弱,担心吃不消,就<span style="color: black;">选取</span>先放疗,化疗后面看<span style="color: black;">状况</span>决定。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">决定了放疗,接下来就陷入了该去哪里放疗(放化疗挂肿瘤科)的纠结中,不得不说<span style="color: black;">选取</span>是最痛苦的,<span style="color: black;">由于</span>每一步都<span style="color: black;">相关</span>生死的感觉,可能听起来有点夸张,<span style="color: black;">然则</span><span style="color: black;">针对</span>病人以及家人<span style="color: black;">来讲</span>,<span style="color: black;">便是</span>这么个心理。化疗重在<span style="color: black;">方法</span>,只要<span style="color: black;">方法</span>定了,去哪里化都<span style="color: black;">同样</span>,放疗<span style="color: black;">需求</span>会高<span style="color: black;">非常多</span>,仪器、定位、计量等都有较高的<span style="color: black;">需求</span>。本来我想让他在四川省肿瘤医院放疗,可是他觉得放疗不是一两天就能完成的,得好几个月,还是想回重庆治疗,毕竟家在重庆,后期复查<span style="color: black;">亦</span>方便。纠结了好几天,虽然我更倾向于四川省肿瘤医院,但想着重庆<span style="color: black;">那样</span>大个城市,<span style="color: black;">亦</span>不会差到哪去,结合病人的心理需求和<span style="color: black;">实质</span>地理<span style="color: black;">前提</span>,觉得回重庆<span style="color: black;">亦</span>挺好。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">回去就赶紧挂号了,接着<span style="color: black;">检测</span>,定<span style="color: black;">方法</span>,放疗。放疗十几次后有点恶心想吐,肝功能指标有点<span style="color: black;">反常</span>(后面时好时坏),别的反应不大,还算幸运。化疗<span style="color: black;">因为</span>过了最佳时间,就没做了。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">后面<span style="color: black;">便是</span>加强营养(非常<span style="color: black;">要紧</span>),<span style="color: black;">保持</span><span style="color: black;">熬炼</span>,<span style="color: black;">定时</span>3个月复查一次,没啦。以前我爸<span style="color: black;">爱好</span>泡麻将馆,<span style="color: black;">此刻</span>肯定是不会去了,烟雾缭绕。他还是一个心理<span style="color: black;">功效</span>非常强的人,每次复查前几天就<span style="color: black;">起始</span>紧张,前天又复查了,各项指标都不错,我妈说这次查完回来放松了不少,她开心得连发好几条语音给我道谢,说是我救了爸爸一命,哈哈,她可是一个从不会表达的人,搞得我还挺<span style="color: black;">欠好</span>意思的。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">关于营养,<span style="color: black;">无</span>特殊补什么,<span style="color: black;">亦</span>从不信什么发物(除了<span style="color: black;">知道</span>致癌物质,啥都<span style="color: black;">能够</span>吃),做到<span style="color: black;">膳食</span>多样化(破壁机<span style="color: black;">咱们</span>从放疗<span style="color: black;">起始</span>用到<span style="color: black;">此刻</span>从未断过,<span style="color: black;">每日</span>一罐子,每种都来一点扔进去,毕竟炒菜的品种有限,多了<span style="color: black;">亦</span>吃不完),安素营养粉<span style="color: black;">始终</span>有喝,<span style="color: black;">每日</span>几勺,<span style="color: black;">亦</span><span style="color: black;">能够</span><span style="color: black;">选取</span>不喝,<span style="color: black;">咱们</span><span style="color: black;">选取</span>喝,看自己吧。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">最后我想说,前期医院和<span style="color: black;">大夫</span>的<span style="color: black;">选取</span>非常<span style="color: black;">要紧</span>,不要怕麻烦,不要图便宜在小<span style="color: black;">地区</span>治疗,除非迫不得已,否则后期吃大亏,且世上<span style="color: black;">无</span><span style="color: black;">懊悔</span>药。<span style="color: black;">此刻</span>网上付费咨询<span style="color: black;">亦</span>多,好<span style="color: black;">医生</span>在线咨询专业又<span style="color: black;">可靠</span>,多咨询几个权威<span style="color: black;">大夫</span>,最后求同存异,对后期决策<span style="color: black;">亦</span>是非常有用的,毕竟术业有专攻。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">不要迷信民间偏方,<span style="color: black;">那样</span>神,癌症还会是世界<span style="color: black;">困难</span>么,“神医”早就<span style="color: black;">得到</span>诺贝尔医学奖了,<span style="color: black;">或</span>坐诊于某大型医院了,至于<span style="color: black;">隐匿</span>在民间么。以及,癌症还得靠西医治疗,中医得了癌症<span style="color: black;">同样</span>求西医,没见他自己抓几副草草药就自己吃好了,别跟我杠,爱信不信,不信拉倒。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">完。</p>
你字句如珍珠,我珍藏这份情。
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