fny5jt9 发表于 2024-5-20 13:22:14

治疗3个月肿瘤缩小50%,晚期肺癌重获手术机会


    <h3 style="color: black; text-align: left; margin-bottom: 10px;">
      <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">【确诊时间】2022年4月7日</p>【确诊年龄】28岁【病理类型】非小细胞肺腺癌ⅣA期【基因突变】EGFR19缺失【治疗过程】靶向药(奥希替尼)、手术【<span style="color: black;">可否</span>转移】胸膜转移
    </h3>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">明明是肺癌,一<span style="color: black;">起始</span>却被误诊为肺结核;</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">明明是肺腺癌,一<span style="color: black;">起始</span>竟检测不到突变;</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">多位知名专家告诉我:“放弃吧,你不适合手术了。”</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">但我不甘心,自己才28岁,我想要为自己的命运搏一把。为了寻求降期手术机会,8个月内我跑了5家医院,看了多位肺癌知名专家,<span style="color: black;">最终</span>,在肿瘤缩小后找到华西医院周清华教授为我主刀,顺利手术。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">01 生死一线,肺癌被误诊为肺结核</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">2022年3月初,我<span style="color: black;">由于</span>打喷嚏会<span style="color: black;">引起</span>偶尔的胸痛<span style="color: black;">因此</span>去当地医院做了个体检,肺部CT提示右肺上叶有一近2公分的实性结节,右侧叶间胸膜多发结节。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我<span style="color: black;">无</span>耽搁马上去了苏北人民医院,看了门诊专家说可能是肺癌<span style="color: black;">亦</span>有可能是肺结核,他综合<span style="color: black;">思虑</span>让我去传<span style="color: black;">患病</span>医院。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我找了传染科<span style="color: black;">专家</span>,她认定大概率是肺结核<span style="color: black;">因此</span>行抗结核治疗,可<span style="color: black;">大夫</span>在我<span style="color: black;">身体</span><span style="color: black;">始终</span><span style="color: black;">无</span>找到结核杆菌;<span style="color: black;">倘若</span>说不是肺结核,但tsport阳性ppd强阳性。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">就在<span style="color: black;">大夫</span>准备给我上结核药时我叫停了,我问<span style="color: black;">大夫</span>我的右肺上叶病灶是啥,<span style="color: black;">她们</span>的意思是大概率说结核<span style="color: black;">然则</span><span style="color: black;">不可</span>打包票。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">面对这种不确定的诊断,我随即出院去西安找父亲,并<span style="color: black;">认识</span>到唐都医院在胸外上是全国顶尖的科室。<span style="color: black;">然则</span>唐都的专家还是说有结核症先看结核,家里人<span style="color: black;">亦</span>有点<span style="color: black;">幸运</span>,认为肺结核总比肺癌要好。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">02 命运抉择,转移后依旧想要手术</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">父亲的<span style="color: black;">伴侣</span>介绍我去西安国际医学中心,这是一家私立医院<span style="color: black;">然则</span>汇集了唐都、西京、西交<span style="color: black;">第1</span><span style="color: black;">附庸</span>医院各科大牌<span style="color: black;">专家</span>。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">次日</span>早上我来到了西安国际医学中心由欧阳海峰院长,<span style="color: black;">因为</span>肺部的病灶<span style="color: black;">欠好</span>穿刺,他提议<span style="color: black;">能够</span>行支气管镜导航取活检,我<span style="color: black;">暗示</span>同意。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">没想到结果出来后让我如五雷轰顶——少许异变细胞符合腺癌(肺腺癌)。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">当时我父亲本是接我出院带我去参加<span style="color: black;">伴侣</span>的饭局,他看到结果后<span style="color: black;">全部</span>人<span style="color: black;">亦</span>都懵了。就<span style="color: black;">这般</span>默默的陪了我<span style="color: black;">一晚上</span>,<span style="color: black;">然则</span>我却<span style="color: black;">反常</span>的冷静,我<span style="color: black;">晓得</span>属于我的战争<span style="color: black;">起始</span>了。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">欧阳院长的意思是,<span style="color: black;">倘若</span>主病灶是腺癌,<span style="color: black;">那样</span>胸膜上大概率<span style="color: black;">已然</span>转移失去手术机会了。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">次日</span>行PET-CT,并且用我的外周血做了基因检测。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">过了大概两天,检测结果出来了,证实叶间胸膜结节<span style="color: black;">已然</span>转移。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">1.<span style="color: black;">第1</span>次基因检测<span style="color: black;">没</span>突变</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我不<span style="color: black;">晓得</span><span style="color: black;">为何</span><span style="color: black;">不可</span>手术,<span style="color: black;">亦</span>不甘心<span style="color: black;">无</span>手术机会,<span style="color: black;">因此</span>当我<span style="color: black;">晓得</span>李小飞<span style="color: black;">专家</span>就在该院后,在我的一再强求下胸外科专家看了我的报告,<span style="color: black;">最后</span><span style="color: black;">她们</span>同意给我手术。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">当天<span style="color: black;">夜晚</span>我母亲告诉我让我去北京东肿找一下赫捷院士,她给我找到了号。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">本以为事情正朝着好的方向前进,没想到周五基因检测报告竟然<span style="color: black;">表示</span>我<span style="color: black;">无</span>突变,这让我一下子方寸大乱。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">原先我想着虽然是肺腺癌,但好在这种肺癌分型突变概率很高,要不是EGFR要不是ALK,没想到我竟然一个都<span style="color: black;">无</span>“捞到”。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我暂停了这边手术的计划,北上找全国最顶尖的专家寻最佳<span style="color: black;">方法</span>。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">周一早上我和<span style="color: black;">妻子</span>一大早就来到了东肿,见到了赫捷院士,他直接否决了外院的报告让我<span style="color: black;">检测</span>后行胸腔镜探查,<span style="color: black;">倘若</span>胸膜转移直接关胸,<span style="color: black;">知道</span>告诉我<span style="color: black;">倘若</span>转移<span style="color: black;">再也不</span>行手术。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我<span style="color: black;">全部</span>人<span style="color: black;">懊丧</span>得不行,于是在东肿又<span style="color: black;">持续</span>看了三个专家。内科的专家让我<span style="color: black;">亦</span>别做活检了直接上免疫<span style="color: black;">药品</span>,说我这种<span style="color: black;">状况</span>突变的概率不大。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">2.第二次基因检测有突变了</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">来北京真是给我一记闷棍,<span style="color: black;">能够</span>说是很大的打击了。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">但我<span style="color: black;">忽然</span>想到北京我还有北肿的赵军<span style="color: black;">专家</span>没看,我抱着侥幸的心态找到了赵军<span style="color: black;">专家</span>,赵<span style="color: black;">专家</span>和蔼可亲,看到我的报告直接让我找柳晨<span style="color: black;">专家</span>穿刺,他说<span style="color: black;">青春</span>的腺癌<span style="color: black;">通常</span>都有突变,让我抓紧时间再去做个基因检测试试。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">次日</span>我就住进京西肿瘤医院,一星期后出院,有少量气胸。思路迪检测报告(组织送检)出院第三天出来了,EGFR 19缺失。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我谢天谢地,<span style="color: black;">尤其</span>感谢赵军<span style="color: black;">专家</span>。随即又看了一次他的门诊,看完门诊后赵军<span style="color: black;">专家</span>给我开了<span style="color: black;">第1</span>颗靶向药奥希替尼,并叮嘱我<span style="color: black;">一月</span>后行<span style="color: black;">第1</span>次复查。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">第1</span>次复查,病灶缩小30%,叶间胸膜大部分结节消失。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">03 幸运,华西周清华教授为我手术</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">时期</span>感谢觅健平台中的蔡老师、企鹅大哥的<span style="color: black;">举荐</span>,在第三个月<span style="color: black;">亦</span><span style="color: black;">便是</span>今年8月底<span style="color: black;">最终</span>挂到了周清华教授的门诊。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">周清华教授让我先<span style="color: black;">检测</span><span style="color: black;">评定</span>,等待<span style="color: black;">检测</span>的那天<span style="color: black;">夜晚</span>我<span style="color: black;">一晚上</span><span style="color: black;">没</span>眠,生怕周清华教授不收我。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">那一天,周清华教授问我愿意手术吗?<span style="color: black;">为何</span>不手术而要穿刺?</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">就这么两句话,我就激动的热泪盈眶,相信<span style="color: black;">仅有</span>同为癌症<span style="color: black;">病人</span>的病人<span style="color: black;">才可</span>理解,那种<span style="color: black;">期盼</span>做手术,但看了好多专家都告诉你,放弃吧,<span style="color: black;">无</span>手术机会了,而周清华教授<span style="color: black;">做为</span>业界胸外科大咖,他的话不仅让我得偿所愿,还让我有了更强的<span style="color: black;">自信心</span>。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">后面拿到入院登记<span style="color: black;">通告</span>后,很长一段时间我都开心得像一只小鸟。回到江苏后<span style="color: black;">亦</span>迎来喜讯,CT结果<span style="color: black;">表示</span>,肺部主病灶<span style="color: black;">已然</span>在奥希替尼的<span style="color: black;">功效</span>下缩小近50%,胸膜<span style="color: black;">没</span><span style="color: black;">表示</span><span style="color: black;">反常</span>。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">在家又<span style="color: black;">持续</span>等了1个月,接到了管床<span style="color: black;">大夫</span>沈<span style="color: black;">大夫</span>的<span style="color: black;">tel</span>。当时我不在四川,外省入川<span style="color: black;">必须</span>三天三检,赶不上十月前最后一批手术了。好在沈<span style="color: black;">大夫</span><span style="color: black;">尤其</span>细心,让我先别入院,节后回<span style="color: black;">第1</span>批<span style="color: black;">通告</span>我,<span style="color: black;">由于</span>当时那种<span style="color: black;">状况</span>就算我入院了<span style="color: black;">亦</span>是浪费住院费,要等到十月假期结束<span style="color: black;">才可</span>手术。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">手术过程</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">10月6日,我来到四川并行核酸检测。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">10月9日,第三次核酸检测完成后,沈<span style="color: black;">大夫</span>说我明天就<span style="color: black;">能够</span>住院了,当天下午收到了入院<span style="color: black;">通告</span>。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">10月10日早上,顺利入院,暂停奥希替尼,见到了我的管床<span style="color: black;">大夫</span>沈老师,怎么说呢,我<span style="color: black;">无</span>见过这么好的<span style="color: black;">大夫</span>,像一个大哥哥。他仔细整理了我的病例资料,我问他我能治好吗?他回我既然<span style="color: black;">咱们</span>把你收下了就会对你负责到底。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">10月11日,做完了一系列的<span style="color: black;">检测</span>后<span style="color: black;">大夫</span><span style="color: black;">通告</span>我13日早上手术。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">10月13日早上6点50 ,周清华教授就来查房了,他亲切的让我加油并且术后要好好咳嗽。沈<span style="color: black;">大夫</span>还特地发了个<span style="color: black;">微X</span>给我,让我要加油,手术间见!这让我有一种莫名的感动。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">下午2点我被推入手术室候诊,大概等了2个多小时吧。反正<span style="color: black;">麻木</span>口罩我都没撑得过三秒就睡着了。术后我<span style="color: black;">发掘</span>我竟然没进ICU而是被直接推回病房了,<span style="color: black;">大夫</span>说我手术很顺利,各项体征很好<span style="color: black;">不消</span>去ICU了。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">术后6天出院,重新吃奥希替尼,前前后后一共住了九天,过程一切顺利。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">回到租房的<span style="color: black;">第1</span>天拿掉<span style="color: black;">止疼</span>泵,疼了两夜没怎么睡好觉,后来习惯了之后<span style="color: black;">亦</span>就好了。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">术后12天我去看了沈<span style="color: black;">大夫</span>的门诊,他告诉我伤口恢复得很好,<span style="color: black;">能够</span>回家等病理报告,并且给了我一个拥抱让我好好恢复。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">术后27天,手术部位有麻木感,睡觉睡得有点憋,<span style="color: black;">况且</span>咳嗽。这些都是术后<span style="color: black;">平常</span>的<span style="color: black;">有些</span>症状。之前确诊的胸膜广泛转移,在这次病理报告上<span style="color: black;">无</span>看到。我<span style="color: black;">亦</span>不<span style="color: black;">晓得</span>这算不算降期成功,应该算是一个好的<span style="color: black;">起始</span>吧。问诊了赵军<span style="color: black;">专家</span>,他<span style="color: black;">意见</span>我MRD后决定<span style="color: black;">可否</span>停药。</p>
    <div style="color: black; text-align: left; margin-bottom: 10px;"><img src="https://pic3.zhimg.com/80/v2-8e19486ee97c7ef465a1a20f2b9a8386_720w.webp" style="width: 50%; margin-bottom: 20px;"></div>
    <div style="color: black; text-align: left; margin-bottom: 10px;"><img src="https://pic2.zhimg.com/80/v2-1dc73d06428dfa8cc16efe23a12b407d_720w.webp" style="width: 50%; margin-bottom: 20px;"></div>术后报告<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">说真的,我能<span style="color: black;">循序渐进</span><span style="color: black;">步行到</span><span style="color: black;">此刻</span><span style="color: black;">这般</span>,离不开<span style="color: black;">妻子</span>家人的支持,<span style="color: black;">妻子</span>对我几乎如影随形。谢谢她默默<span style="color: black;">没</span>闻的付出,<span style="color: black;">亦</span>感谢蔡老师和觅健群里的各位大神,各位鼓励指引我的哥哥姐姐。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">期盼</span>大家看完我的经验后<span style="color: black;">亦</span>不要放弃,正如一位总是安慰我的觅友所说,在抗癌这条路上,<span style="color: black;">咱们</span>是<span style="color: black;">无</span>回头路可走的人,<span style="color: black;">因此</span>做任何决定,<span style="color: black;">小心</span>一点,多咨询<span style="color: black;">有些</span>专家,多参考<span style="color: black;">有些</span>觅友的经验,如此<span style="color: black;">亦</span>能少走弯路更靠近治愈了。</p>
    <h3 style="color: black; text-align: left; margin-bottom: 10px;">觅健互助君:前段时间<span style="color: black;">始终</span>有<span style="color: black;">非常多</span>觅友问互助君关于降期手术的问题,<span style="color: black;">因此呢</span>,互助君征得“任性的长颈鹿7651”的授权,将他的抗癌经验分享给<span style="color: black;">大众</span>。觅友们<span style="color: black;">可否</span>还想<span style="color: black;">认识</span><span style="color: black;">更加多</span><span style="color: black;">相关</span>降期手术的问题呢?评论区留言,互助君在下一次甄选的抗癌经验中会<span style="color: black;">帮忙</span><span style="color: black;">大众</span>多<span style="color: black;">认识</span>这方面的问题。</h3>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">爱好</span>的觅友右下角点个“赞”,祝抗癌顺利!</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">声明:<span style="color: black;">文案</span><span style="color: black;">源自</span>觅友经验,觅健经授权<span style="color: black;">颁布</span>。文中内容仅为觅友个人观点,不同<span style="color: black;">病人</span><span style="color: black;">选取</span>的治疗方式不同,治疗经历仅作学习交流。下载觅健搜索“任性的长颈鹿7651”<span style="color: black;">能够</span>与作者交流,还<span style="color: black;">能够</span>看<span style="color: black;">更加多</span>抗癌经验。</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">内容制作</p>

    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">文案</span>授权:任性的长颈鹿7651</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">封面<span style="color: black;">照片</span>:摄图网+稿定设计</p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">外链论坛:http://www.fok120.com/觅健互助君</p>




页: [1]
查看完整版本: 治疗3个月肿瘤缩小50%,晚期肺癌重获手术机会