从医生口中得知：很久存活的骨髓瘤病人都有一个一块点！
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">病人是我爷爷，今年是65岁，在患病之前是一个很健康的身体，滴酒不沾，作息规律，热爱运动（<span style="color: black;">尤其</span>酷爱冬泳），谁<span style="color: black;">亦</span>没想到这么硬朗的一个人会得多发性骨髓瘤。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">都说这个病误诊率有百分五十，当时确诊的时候<span style="color: black;">亦</span>是折腾了很久才查出来是多发性骨髓瘤。稀里糊涂的上网查资料，听<span style="color: black;">大夫</span>说的<span style="color: black;">有些</span>术语云里雾里，不<span style="color: black;">晓得</span>这个病到底是怎么一回事，但总结下来是一个不小的病，是恶性病。</p>
<div style="color: black; text-align: left; margin-bottom: 10px;"><img src="https://pic1.zhimg.com/80/v2-2138a451a4a7075c96a6bc0c6cf319f0_720w.webp" style="width: 50%; margin-bottom: 20px;"></div>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">无</span>多少时间<span style="color: black;">哀痛</span>，<span style="color: black;">亦</span><span style="color: black;">无</span>时间去琢磨<span style="color: black;">为何</span>身体这么好会<span style="color: black;">忽然</span>得多发性骨髓瘤。<span style="color: black;">咱们</span>跟随着<span style="color: black;">大夫</span>的<span style="color: black;">意见</span><span style="color: black;">起始</span>了化疗，当时定的是四个疗程硼替佐米+地塞米松的<span style="color: black;">方法</span>，后来打听了一下<span style="color: black;">非常多</span>骨髓瘤<span style="color: black;">病人</span><span style="color: black;">初期</span>都是用这个<span style="color: black;">方法</span>去治疗。<span style="color: black;">由于</span>害怕化疗<span style="color: black;">时期</span>的<span style="color: black;">有些</span>并发症、副<span style="color: black;">功效</span>、不良反应等，<span style="color: black;">亦</span>做了<span style="color: black;">非常多</span>的功课，<span style="color: black;">亦</span>跟病房的医护人员<span style="color: black;">认识</span>过这个病的<span style="color: black;">状况</span>，得知不是<span style="color: black;">马上</span>要命的病，好歹是松了一口气。但这不<span style="color: black;">表率</span>骨髓瘤的治疗就会很<span style="color: black;">容易</span>，相反爷爷的反应是比<span style="color: black;">很强</span>的，<span style="color: black;">然则</span>好在有惊<span style="color: black;">没</span>险，<span style="color: black;">时期</span>的<span style="color: black;">有些</span>不良<span style="color: black;">状况</span>都用药撑过来了，四个疗程过后<span style="color: black;">亦</span>达到预期的缓解指标。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">后边<span style="color: black;">大夫</span><span style="color: black;">意见</span><span style="color: black;">咱们</span>开展自体移植，跟其他<span style="color: black;">有些</span>病友<span style="color: black;">同样</span>，<span style="color: black;">咱们</span>对这个病的治疗安排都是听<span style="color: black;">大夫</span><span style="color: black;">意见</span>的。<span style="color: black;">亦</span><span style="color: black;">由于</span>达到了采集干细胞的指标标准，<span style="color: black;">因此</span>顺理成章的就接受移植前的治疗了，预处理<span style="color: black;">方法</span>是大剂量的环磷酰胺，等细胞降下来打升细胞的针剂，当时浆细胞比例降的<span style="color: black;">亦</span>很<span style="color: black;">显著</span>，从刚<span style="color: black;">起始</span>是52.5%到后来的8%，再到查不出浆细胞，但用<span style="color: black;">大夫</span>的话说是<span style="color: black;">无</span><span style="color: black;">检测</span>出来不是说<span style="color: black;">无</span>恶性细胞的意思，而是骨髓里浆细胞的量比较少。按<span style="color: black;">此刻</span>的<span style="color: black;">检测</span>设备还查不出来。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">由于</span>病情定义较高危，<span style="color: black;">因此</span>一共是采集了三天才完事。后来一切就跟预想的<span style="color: black;">同样</span>，移植还算比较顺利，<span style="color: black;">时期</span>在仓内发了高烧比较危险，最后<span style="color: black;">亦</span>是靠着进口药过了这个关卡才出院回家修养，开了维持口服的药。</p>
<div style="color: black; text-align: left; margin-bottom: 10px;"><img src="https://pic2.zhimg.com/80/v2-e3d03ad5523fffb2d42944adfebf8661_720w.webp" style="width: 50%; margin-bottom: 20px;"></div>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">到<span style="color: black;">此刻</span>是自体移植的六个月，刚好是半年。爷爷的<span style="color: black;">状况</span>还算挺好的，<span style="color: black;">时期</span>怕感染在移植后的前几个月都<span style="color: black;">尤其</span>小心。<span style="color: black;">此刻</span><span style="color: black;">能够</span>外出做<span style="color: black;">有些</span><span style="color: black;">初期</span>的晨练活动了，<span style="color: black;">无</span>感觉到不适。问了主治<span style="color: black;">大夫</span>说<span style="color: black;">倘若</span>身体<span style="color: black;">准许</span>的话<span style="color: black;">亦</span><span style="color: black;">能够</span>适当活动，对病情<span style="color: black;">亦</span>有<span style="color: black;">帮忙</span>，<span style="color: black;">便是</span><span style="color: black;">尽可能</span>少去密集的<span style="color: black;">地区</span>。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">投稿来分享这段经历<span style="color: black;">亦</span>是起一个共鸣吧，<span style="color: black;">做为</span>骨髓瘤<span style="color: black;">病人</span>的家属，<span style="color: black;">亦</span><span style="color: black;">晓得</span>这个病并不是温顺的，<span style="color: black;">咱们</span>只<span style="color: black;">期盼</span>能够尽最大的<span style="color: black;">奋斗</span>去维持住一个稳定缓解的结果，让爷爷能多<span style="color: black;">陪同</span><span style="color: black;">咱们</span>。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">记得之前跟主治的一次谈话印象深刻，骨髓瘤这个病虽然<span style="color: black;">日前</span>医学上还<span style="color: black;">无</span>被<span style="color: black;">解决</span>，<span style="color: black;">然则</span>在<span style="color: black;">非常多</span><span style="color: black;">病人</span>身上<span style="color: black;">能够</span>看到这个病跟慢性病<span style="color: black;">同样</span>被<span style="color: black;">掌控</span>，<span style="color: black;">亦</span>有<span style="color: black;">期盼</span><span style="color: black;">长时间</span><span style="color: black;">存活</span>很久，这些<span style="color: black;">长时间</span>活着的<span style="color: black;">病人</span>虽然病情不尽相同，<span style="color: black;">然则</span>有一个很<span style="color: black;">类似</span>的<span style="color: black;">一起</span>点<span style="color: black;">便是</span><span style="color: black;">心情</span>稳定，看的很开。家人们不离不弃的照顾，<span style="color: black;">亦</span>对骨髓瘤<span style="color: black;">病人</span><span style="color: black;">长时间</span><span style="color: black;">存活</span>有很大的<span style="color: black;">帮忙</span>。</p>
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