28 岁癌症晚期，我想当淋巴瘤届网红
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">柱子哥的公众号头像还是她长发及腰时的样子。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">问她：「以后还要留长卷发吗？」</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">她回：</span><span style="color: black;">「以后应该<span style="color: black;">无</span>机会留长发了，<span style="color: black;">然则</span>我短发<span style="color: black;">亦</span>很港风。」</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">她的病例上写着：<strong style="color: blue;">「滤泡淋巴瘤 2 级 4 期；系统性红斑狼疮可能。」</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">柱子哥</p><img src="https://mmbiz.qpic.cn/mmbiz_jpg/Pvr3FasqXd77kFoByicZicZpU9TKnO237T2oOnAGsCiccLImT0xyO6oJChoiasTfKFGLBexRq2PgiasFwlIibqcasZdw/640?wx_fmt=jpeg&tp=webp&wxfrom=5&wx_lazy=1&wx_co=1" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">照片</span><span style="color: black;">源自</span>：作者<span style="color: black;">供给</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">滤泡型淋巴瘤（FL）是一种惰性淋巴瘤，晚期<span style="color: black;">不可</span><span style="color: black;">经过</span>化放疗治愈，相当一部分<span style="color: black;">病人</span>会出现<span style="color: black;">疾患</span><span style="color: black;">发展</span>或复发，<span style="color: black;">一般</span>会在初次治疗 3～5 年后<span style="color: black;">出现</span><span style="color: black;">疾患</span><span style="color: black;">发展</span>，随着复发次数的<span style="color: black;">增加</span>缓解期将越来越短，难治性机率<span style="color: black;">增多</span>，<span style="color: black;">引起</span>总<span style="color: black;">存活</span>期缩短。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">通俗地说，柱子哥是一位癌症晚期<span style="color: black;">病人</span>。她 28 岁，坐标上海，患病前从事金融工作。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">9 个月前，<span style="color: black;">疾患</span>毫<span style="color: black;">没</span>预兆地闯入了她的生命，中断了她为自己设计的故事线。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">患病后，柱子哥经历了<span style="color: black;">没</span>数「苦不堪言」的时刻，<span style="color: black;">亦</span><span style="color: black;">起始</span>了自己的「硬核美少女」抗癌之路：制作思维导图、写公号、参加临终关怀志工培训，<span style="color: black;">同期</span>，继续爱美。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">「普通的乏善可陈的人生啊，总<span style="color: black;">能够</span>留下<span style="color: black;">有些</span>事、<span style="color: black;">有些</span>想说的话吧。」</strong>柱子哥在她的公号里写道。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">以下是柱子哥的自述——</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">硬核美少女的治疗之路：</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">6 次化疗 ，躺了 5 个月</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;"><span style="color: black;">大众</span>好，我是柱子哥，厚脸皮地<span style="color: black;">叫作</span>自己是一位硬核知识型美少女。</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">要不是 2018 年 9 月<span style="color: black;">机构</span>组织体检，我还<span style="color: black;">始终</span>是一个嗜工作如命的金融民工，<span style="color: black;">期盼</span>工作<span style="color: black;">挣钱</span>给家人更好的生活。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">但天不遂人愿，历经影像<span style="color: black;">检测</span>和两处活检之后，我在<span style="color: black;">一月</span>后确诊了 4 期恶性肿瘤，肿瘤全身多发。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;"><span style="color: black;">倘若</span>说 PET/CT</strong><span style="color: black;">（一种筛查全身<span style="color: black;">初期</span>肿瘤的<span style="color: black;">办法</span>）</span><strong style="color: blue;">上<span style="color: black;">表示</span>的每一个病灶都像一个亮起的小灯，那我<span style="color: black;">便是</span>一棵浑身挂满彩灯的瘦瘦的「圣诞树」</strong>：</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">「双侧腮腺区、颈血管旁、颈后三角、颌下、锁骨区肿大淋巴结，双侧腋窝和上臂肌肉间隙见<span style="color: black;">反常</span>肿大淋巴结；上纵隔血管旁、食管旁、降主动脉前方、双肺门、双侧内乳区、膈上心周见糖代谢<span style="color: black;">反常</span><span style="color: black;">升高</span>肿大淋巴结；右侧胸腔积液；腹腔积液……」</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">是的，我病了，<span style="color: black;">况且</span>很严重。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">确诊 3 天后，我<span style="color: black;">起始</span>接受 6 次免疫化疗。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">柱子哥住院<span style="color: black;">时期</span></p><img src="https://mmbiz.qpic.cn/mmbiz_jpg/Pvr3FasqXd77kFoByicZicZpU9TKnO237TicE0p25YfOgcddfvKT09V1dEw7DQUjx49M0vsYZq66AasOyv3EYib9ng/640?wx_fmt=jpeg&tp=webp&wxfrom=5&wx_lazy=1&wx_co=1" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">照片</span><span style="color: black;">源自</span>：作者<span style="color: black;">供给</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我的体质比普通人差<span style="color: black;">非常多</span>，身高 168 cm，体重不足 90 斤，再加上确诊时就<span style="color: black;">已然</span>有全身脏器多处累及、骨髓侵犯、肝脾肿大、胸腔和腹盆腔积液的症状，虽然年纪轻，还是<span style="color: black;">第1</span>时间「卧倒」了。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">激素副<span style="color: black;">功效</span><span style="color: black;">引起</span>我<span style="color: black;">起始</span>了<span style="color: black;">长时间</span>的失眠，除了吃饭和上厕所外基本<span style="color: black;">便是</span>卧床躺着。挂红药水的当天会全身浮肿，抱着马桶吐一整夜，再一把鼻涕一把泪地把吐了的药再吃回去。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">后来几个月的时间里，我的身体每况愈下：靶向药美罗华伤肺，我喘得像一条夏天的狗；骨髓<span style="color: black;">控制</span>血象低，离开家门到有人的场合就会<span style="color: black;">马上</span>发热虚弱，全身<span style="color: black;">没</span>力。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">每一个</span>难受到天昏地暗的夜晚，我都跟老唐<span style="color: black;">（柱子哥的爱人）</span>说：「不行了太难受了，老子不治了，准备洗洗睡了就<span style="color: black;">这般</span>吧，有事烧纸说。」</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">老唐就问我：「那你父母和奶奶怎么办？」「你挂了<span style="color: black;">大众</span>就又觉得淋巴瘤肯定活不长了，你白<span style="color: black;">奋斗</span>了。」</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">只能就范。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">柱子哥住院<span style="color: black;">时期</span></p><img src="https://mmbiz.qpic.cn/mmbiz_jpg/Pvr3FasqXd7eT39ibXIHDaqn9Nzq4hIA207QgMPAnt6DAVJBV9df1xI7VJCZUj2G7Q2TTaIGDJwrk5Jic4IKgXlQ/640?wx_fmt=jpeg&tp=webp&wxfrom=5&wx_lazy=1&wx_co=1" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">照片</span><span style="color: black;">源自</span>：作者<span style="color: black;">供给</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">可是啊，<span style="color: black;">非常多</span>时候我<span style="color: black;">亦</span>觉得，就算再多的声音跟我讲道理、打气、加油、鼓励，我那被死死按在泥沼里有<span style="color: black;">没</span>尽疲惫感的身体，就像被拖拽掏空<span style="color: black;">通常</span>。我要一个人去用力向上挣扎，太辛苦太<span style="color: black;">没</span>力了，别人轻飘飘的「要坚强」三个字只是像雪花<span style="color: black;">同样</span>落在我头上，马上融化。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">之于我，人生就像个魔方，从静置、完好、未开封，到被拆开、扭转、摆弄。</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">随着治疗的进行，当我<span style="color: black;">起始</span><span style="color: black;">逐步</span>恢复体力憧憬着回到本来生活轨迹的时候，所有人都在鼓励我，跟我说「<span style="color: black;">此刻</span>身体是最<span style="color: black;">要紧</span>的」、「不<span style="color: black;">想要</span>以后的事情」。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">但我还是<span style="color: black;">敏锐</span>地察觉到自己内心「价值感」的剥离，感觉自己<span style="color: black;">持续</span>地失去「家庭支柱」、「工作狂人」的人生角色，剩下一具激素胖、秃头、毁容的空壳。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;"><span style="color: black;">非常多</span>事回不去了，我的人生<span style="color: black;">必须</span>新开一条故事线。</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">往后余生，要爱<span style="color: black;">美丽</span></strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">第1</span>次化疗后 10 天，我的体感稍微好了些，<span style="color: black;">能够</span>坐在沙发上看几个小时电视，但严重的脱发随之而来。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">老唐陪我去假发店剃了光头，推子在头皮上如收割机<span style="color: black;">同样</span>划断头发。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">从此，我在家中被老唐<span style="color: black;">叫作</span>为「小秃仔」。</span></p><img src="https://mmbiz.qpic.cn/mmbiz_jpg/Pvr3FasqXd7eT39ibXIHDaqn9Nzq4hIA2tKsAqJ4jXh2tGsucrfUhdI3pbHZw4QOwicb8VxkAWQbm9SUxxBqTkow/640?wx_fmt=jpeg&tp=webp&wxfrom=5&wx_lazy=1&wx_co=1" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">照片</span><span style="color: black;">源自</span>：作者<span style="color: black;">供给</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">癌症治疗<span style="color: black;">时期</span>，<span style="color: black;">疾患</span>消耗最<span style="color: black;">显著</span>的是外貌，<span style="color: black;">药品</span>的毒副<span style="color: black;">功效</span><span style="color: black;">表现</span>在皮肤、指甲、毛发等各个方面。面容枯槁难免影响心情，我<span style="color: black;">能够</span>察觉到那种「我怎么变成这个样子了」的<span style="color: black;">懊丧</span>。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">虽然说</span>躺在床上度日如年，<span style="color: black;">然则</span>只要有出门去医院的机会，我都会认认真真地穿自己<span style="color: black;">爱好</span>的衣服，踩十厘米的高跟鞋，每一次验血都在医院的电梯里自拍一张，<strong style="color: blue;">让自己千万不要放弃好好治疗回到从前生活的<span style="color: black;">期盼</span>，<span style="color: black;">亦</span>不要彻底放弃取悦自己让自己好看、舒服的心情。</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我在病友论坛里发的<span style="color: black;">第1</span>篇帖子<span style="color: black;">便是</span>：「想问治疗<span style="color: black;">时期</span><span style="color: black;">能够</span>穿皮毛一体么？」</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">失去头发，<span style="color: black;">然则</span>有<span style="color: black;">没</span>数好看的帽子，我<span style="color: black;">全部</span>冬天戴了好多顶好看的帽子，以前上班我总是<span style="color: black;">欠好</span>意思戴。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">柱子哥的帽子</p><img src="https://mmbiz.qpic.cn/mmbiz_jpg/Pvr3FasqXd7eT39ibXIHDaqn9Nzq4hIA2tjQibyPVSMEibDnudagKDvk4zHbB8s4IxnHjLM6sR5Nic9YRkAM1P8ZKA/640?wx_fmt=jpeg&tp=webp&wxfrom=5&wx_lazy=1&wx_co=1" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;"><span style="color: black;">照片</span><span style="color: black;">源自</span>：作者<span style="color: black;">供给</span></span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">在我 21 天的化疗周期里血象最好的那天，我还溜出去修修指甲，顺便种下睫毛（虽然眉毛和睫毛几乎掉光，还变<span style="color: black;">成为了</span>透明的）。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">柱子哥的美甲贴片</p><img src="https://mmbiz.qpic.cn/mmbiz_jpg/Pvr3FasqXd7eT39ibXIHDaqn9Nzq4hIA2D7L7RqrAT8deXamUgDeB77OjGG8ONhgaZpiatLg5qyFkFHGFaVAib2dw/640?wx_fmt=jpeg&tp=webp&wxfrom=5&wx_lazy=1&wx_co=1" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">照片</span><span style="color: black;">源自</span>：作者<span style="color: black;">供给</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">为了不使脸色被黑色<span style="color: black;">或</span>蓝色医用口罩衬得更暗沉，我<span style="color: black;">爱好</span>戴这款粉色的小兔子图案的口罩。</p><img src="https://mmbiz.qpic.cn/mmbiz_jpg/Pvr3FasqXd7eT39ibXIHDaqn9Nzq4hIA2Kc0G4FfqGiaVAdIyHEdia9VTw5xY9MIAqB1WKsOpCxmJwZEDHesibr0jQ/640?wx_fmt=jpeg&tp=webp&wxfrom=5&wx_lazy=1&wx_co=1" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">照片</span><span style="color: black;">源自</span>：作者<span style="color: black;">供给</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">就连平时不会露出来的输液港<span style="color: black;">（一种完全<span style="color: black;">移植</span><span style="color: black;">身体</span>的静脉输液系统）</span>的伤疤，我<span style="color: black;">亦</span>选了<span style="color: black;">非常多</span>锦鲤、美人鱼的纹身贴来遮盖，即便到了夏天，<span style="color: black;">亦</span><span style="color: black;">能够</span>大方地穿低胸方领上衣。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">纹身贴</p><img src="https://mmbiz.qpic.cn/mmbiz_jpg/Pvr3FasqXd7eT39ibXIHDaqn9Nzq4hIA2YUS2icFlibWPDSlIMkmyDtC8RMHxezbzxVfBYSfFT13fJ5zEBwYia63uw/640?wx_fmt=jpeg&tp=webp&wxfrom=5&wx_lazy=1&wx_co=1" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">照片</span><span style="color: black;">源自</span>：作者<span style="color: black;">供给</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">有人可能会觉得<span style="color: black;">这般</span>「<span style="color: black;">无</span>病人的样子，这个时候还爱打扮<span style="color: black;">便是</span>矫情、<span style="color: black;">便是</span>作」。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我不这么想。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">我不觉得自己<span style="color: black;">患病</span>了就<span style="color: black;">能够</span>变得对一切<span style="color: black;">无</span>期待、<span style="color: black;">无</span><span style="color: black;">需求</span>、<span style="color: black;">无</span>自律，我<span style="color: black;">亦</span>不觉得<span style="color: black;">做为</span>一个病人就<span style="color: black;">能够</span>理所当然地让别人接受一个自怨自艾、不修边幅的自己。</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">但凡我有体力、<span style="color: black;">前提</span><span style="color: black;">准许</span>，用力所能及的方式取悦自己、支撑求生欲、为<span style="color: black;">有些</span>小事觉得幸福、缓慢地自我治愈，都好过逃避、怨恨、将自己的痛苦错误地归因。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;"><span style="color: black;">倘若</span>人生只剩下一天</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">看起来初期治疗还算顺利挺过来了，<span style="color: black;">然则</span>我有区别于旁人的<span style="color: black;">懊恼</span>。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我的病灶在治疗中不明<span style="color: black;">原由</span>地反复增大，靶向药<span style="color: black;">运用</span>十天后，脖子上还有其他体表部位的病灶就又会<span style="color: black;">起始</span>增大，如此反复了六次。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我就<span style="color: black;">这般</span>提前经历了所有滤泡淋巴瘤病人都会有的恐惧和焦虑，<strong style="color: blue;">「<span style="color: black;">咱们</span>是注定要复发的，只是不<span style="color: black;">晓得</span>什么时候」。</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">将来</span>不明朗的<span style="color: black;">懊丧</span>感叠加复发<span style="color: black;">发展</span>的焦虑，有时<span style="color: black;">亦</span>会让我不禁想：<strong style="color: blue;">停滞的人生、死亡的不确定性和一切的艰辛，到底是为了什么？</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">想来<span style="color: black;">亦</span>奇怪，从前在格子间里我日复一日地抱怨工作、为生活的鸡毛蒜皮怨天尤人，如今在大事面前反倒爆发出惊人的意志力，竟<span style="color: black;">能够</span>冷静而克制。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">其实道理很简单：</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">倘若</span>人生只剩下一天，我是蹲在地上哭一天，还是再喝一口奶茶、吃一顿火锅、穿一件<span style="color: black;">美丽</span>衣服、化一次妆、陪陪家人？</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">倘若</span>我<span style="color: black;">仅有</span>这一手烂牌，是<span style="color: black;">此刻</span>就弃牌下桌还是拼命再出几张？</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">我的人生啊，时不我待，只争朝夕。</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">柱子哥在电梯里的自拍</p><img src="https://mmbiz.qpic.cn/mmbiz_jpg/Pvr3FasqXd7eT39ibXIHDaqn9Nzq4hIA2T7HGSBAHHGqjnib9qbTC4LeiaAE3ZpVZ0uib3uhZXr3cF0fldSdd4mLPg/640?wx_fmt=jpeg&tp=webp&wxfrom=5&wx_lazy=1&wx_co=1" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">照片</span><span style="color: black;">源自</span>：作者<span style="color: black;">供给</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">我决心把<span style="color: black;">安心</span>不下的、<span style="color: black;">要紧</span>的事情都提前。</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">既然担心父母，就为父母计长远，带家里老人检查身体、<span style="color: black;">陪同</span><span style="color: black;">她们</span>学习新事物、自己早早立好遗嘱<span style="color: black;">保准</span>以后的安排。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">既然<span style="color: black;">晓得</span>「反正是要复发的」，就降低心理预期，把自己人生有<span style="color: black;">道理</span>的事情提前做起来，<span style="color: black;">奋斗</span>经营<span style="color: black;">宝贵</span>的羁绊。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">既然自己治疗过程中经历了<span style="color: black;">非常多</span><span style="color: black;">全部</span><span style="color: black;">青年</span>癌症群体共性的困难，那就把这些写下来，让<span style="color: black;">更加多</span>的人<span style="color: black;">晓得</span>「你不是一个人」，于是有了「一只柱柱柱柱子哥」的公众号。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">既然自己深知癌症病人会经历<span style="color: black;">怎么样</span>的人生变故，就用自己活生生的例子，让<span style="color: black;">大众</span><span style="color: black;">晓得</span>，普通人如我，<span style="color: black;">亦</span><span style="color: black;">能够</span>慢慢面对失去和变化，好好生活。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我想让<span style="color: black;">更加多</span>人<span style="color: black;">晓得</span>，<span style="color: black;">患病</span>不是错，没什么<span style="color: black;">欠好</span>意思的，更不是可耻的<span style="color: black;">必须</span>遮掩的。<span style="color: black;">疾患</span>不是<span style="color: black;">咱们</span>人生中最显眼的标签，反倒是<span style="color: black;">咱们</span>的通关证书。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">后来我慢慢明白，其实我的人生不是停滞了。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">我只是提前明白了<span style="color: black;">有些</span>其他人走完人生几十年才会懂得的道理，只是提前了然什么人、什么事是<span style="color: black;">要紧</span>的，<strong style="color: blue;">只是提前放弃了终究会放弃的东西，</strong>只是提前接受了一个本来的自己。</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">当然，<span style="color: black;">亦</span>提前密集收获了本来稀疏散落在人生里的爱、善意和执着，失去了<span style="color: black;">有些</span><span style="color: black;">没</span>福消受的<span style="color: black;">懊恼</span>。早早做了减法，剩下的都是「得」。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">我想<span style="color: black;">作为</span>淋巴瘤届网红</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">我<span style="color: black;">始终</span>觉得，「坐而论道者鄙」，与其抱怨不如行动，总要有人做，<span style="color: black;">为何</span>不是我。</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">刚<span style="color: black;">晓得</span>自己<span style="color: black;">生病</span>的那几天，我曾经百感交集，想与人说，又<span style="color: black;">警觉</span><span style="color: black;">将来</span>可能面对的<span style="color: black;">卑视</span>和偏见。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我害怕万一有一天<span style="color: black;">能够</span>从医院回到陆家嘴工作，会被人认出来，会因背景调查到「<span style="color: black;">病患</span>癌症」而<span style="color: black;">没</span>法就业。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">可是<span style="color: black;">此刻</span>我觉得，<span style="color: black;">仅有</span><span style="color: black;">更加多</span>人<span style="color: black;">认识</span>我的故事，<span style="color: black;">才可</span>够让<span style="color: black;">大众</span><span style="color: black;">再也不</span>「谈癌色变」，<span style="color: black;">才可</span>够打破偏见、<span style="color: black;">卑视</span>、标签，看到一个大大方方展示自己生活、呈现生活背面的血肉之躯。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">仅有</span><span style="color: black;">这般</span>，社会<span style="color: black;">才可</span>够在<span style="color: black;">咱们</span>癌症群体勇敢面对生活的时候，堂堂正正地对待<span style="color: black;">咱们</span>，给<span style="color: black;">咱们</span>堂堂正正为自己人生<span style="color: black;">奋斗</span>的权利，而不是轻易拿走<span style="color: black;">咱们</span>还能够胜任的工作、拿走<span style="color: black;">咱们</span>还能够争取的机会。</p><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">照片</span><span style="color: black;">源自</span>：作者<span style="color: black;">供给</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">事实上，<span style="color: black;">全部</span>淋巴瘤群体有<span style="color: black;">非常多</span>非常厉害、非常优秀的人，治疗之后<span style="color: black;">她们</span>回到拼搏的人生轨迹，结婚生子，事业有成。<span style="color: black;">患病</span>只是<span style="color: black;">她们</span>人生的一小段插曲，大<span style="color: black;">都数</span>人<span style="color: black;">恢复</span>之后都会<span style="color: black;">逐步</span>忘记自己曾是个病人，新生非常美满。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">《滚蛋吧肿瘤君》让<span style="color: black;">非常多</span>人以为淋巴瘤晚期<span style="color: black;">寓意</span>着死亡，我<span style="color: black;">期盼</span>能够用自己的故事激励<span style="color: black;">更加多</span>的人，让<span style="color: black;">大众</span>相信「部分淋巴瘤可治」，不要轻易放弃。</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">同时，淋巴瘤<span style="color: black;">群体还面对着很<span style="color: black;">详细</span>的困难：淋巴瘤分型多，<span style="color: black;">非常多</span>亚型得不到<span style="color: black;">医疗保险</span>覆盖，<span style="color: black;">引起</span><span style="color: black;">非常多</span>病人<span style="color: black;">同期</span>被复发和没钱的恐惧<span style="color: black;">安排</span>。我<span style="color: black;">期盼</span>能够为这个群体发声，让<span style="color: black;">更加多</span>人的人关注到<span style="color: black;">咱们</span>。</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">柱子哥的公众号</p><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">照片</span><span style="color: black;">源自</span>：作者<span style="color: black;">供给</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">普通人的人生中是很少有机会破釜沉舟的，被惯性推着往前走，随波逐流。我<span style="color: black;">亦</span>在随波逐流中<span style="color: black;">持续</span>挣扎，偶尔脆弱，被人搭把手拉上来，再往前漂流。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">可是啊，我想让我的余生更有<span style="color: black;">道理</span>，少一点怯、多一点勇，少在乎一点别人的目光，多做一点自己想做的事。</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我<span style="color: black;">期盼</span>我有一天从医院回陆家嘴上班的时候，堂堂正正、坦荡从容，短发<span style="color: black;">亦</span>漂<span style="color: black;">美丽</span>亮。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我<span style="color: black;">期盼</span>我的主治<span style="color: black;">大夫</span>跟其他新病人<span style="color: black;">说到</span>我的时候会说：<span style="color: black;">「我以前有个爱喝奶茶的病人<span style="color: black;">此刻</span>好着呢，我都快<span style="color: black;">离休</span>了她都又活了 20 年了，你<span style="color: black;">亦</span>不要怕。</span><span style="color: black;">」</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">我<span style="color: black;">期盼</span>我的粉丝以后安慰身边<span style="color: black;">青年</span>癌症病人的时候<span style="color: black;">能够</span><span style="color: black;">说到</span>我：</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">「早年我认识一个叫柱子哥的，28 岁说自己要当网红，<span style="color: black;">此刻</span>多少年过去了还蹦跶呢，你<span style="color: black;">亦</span>要有<span style="color: black;">自信心</span>呀。」</strong></p><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">本文经由 浙江省肿瘤医院肿瘤科医师 丁超</strong><strong style="color: blue;"> 审核</strong></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">— 参考文献 —</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;"> </span><span style="color: black;">Arnold S Freedman, </span><span style="color: black;">Jon C Aster,</span><span style="color: black;">滤泡淋巴瘤的临床表现、病理特征、诊断和预后. UpToDate 临床顾问</span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">策划 </strong>CC</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">责编 </strong>罗布君</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">作者</strong> 柱子哥</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">封面图<span style="color: black;">源自</span></strong> 123rf.com.cn 正版<span style="color: black;">照片</span>库</p><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;">
我赞同你的看法，你的智慧让人佩服，谢谢分享。
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