22岁的直肠癌晚期,两年半从活蹦乱跳到卧床不起,我还能保持多久?
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<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;"><strong style="color: blue;">我的抗癌经历</strong></span></p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">2018年12月的一个上午,同事看我工作状态<span style="color: black;">始终</span><span style="color: black;">欠好</span>叫我去医院检测一下,当天上午在重庆的一个社区医院<span style="color: black;">检测</span>,<span style="color: black;">无</span>重庆的<span style="color: black;">医疗保险</span>,花了200多,<span style="color: black;">大夫</span>做了灌肠和指检。做完那个带眼镜的<span style="color: black;">大夫</span>告诉我可能有点严重,要去大一点的医院<span style="color: black;">瞧瞧</span>,看着他医用手套上的血迹,和这屁股的<span style="color: black;">病痛</span>,我愣了一会,点头准备离开,他又叫住我问我需不<span style="color: black;">必须</span>打一针止血的药?我说:“<span style="color: black;">不消</span>了,这点血还是流得起的”,去他办公室看了看他的<span style="color: black;">检测</span>结果“直肠新生物”?带着什么玩意的心情离开了。</p><img src="https://mmbiz.qpic.cn/mmbiz_png/hf1riaxJibO5B4aOOQ7l2pkA9QEA0cS5EsTWEy0CUwG7gdSHXwGzFuqk1zkYR478dehGV2OGU1GK87quVYu4QEfQ/640?wx_fmt=png&tp=webp&wxfrom=5&wx_lazy=1&wx_co=1" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">回寝室的路上自己查了一下“直肠新生物”的大致结果“直肠癌”!我靠,不会我<span style="color: black;">便是</span>那个天选之子吧!想了很久还是给爸爸打了<span style="color: black;">tel</span>,我还记得爸爸<span style="color: black;">第1</span>句话问我“吃饭了<span style="color: black;">无</span>”,一顿寒暄过后心里还是很难受,整理了下<span style="color: black;">心情</span>给我爸说要回成都<span style="color: black;">检测</span>一下,“先在重庆的大医院<span style="color: black;">检测</span>一下再说吧”爸爸<span style="color: black;">这般</span>说了,过后<span style="color: black;">起始</span>联系在重庆对我最好的姑婆张罗这事。当天下午,姑婆在家照顾孙女没来,公公陪我<span style="color: black;">一块</span>到重庆的肿瘤医院挂了个专家号,等了半天描述了我的症状,那个<span style="color: black;">大夫</span>叫我先住院再做<span style="color: black;">检测</span>,做肠镜得排到<span style="color: black;">一月</span>后了。<span style="color: black;">因为</span><span style="color: black;">医疗保险</span>买在成都的,下午就请假买票回成都了。</p><img src="https://mmbiz.qpic.cn/mmbiz_png/hf1riaxJibO5B4aOOQ7l2pkA9QEA0cS5Es0uyKJFxwS7HKbXg7lcmsIyvaZg9ZsMImnuIVVrE02q3Q5RP9vZVia2g/640?wx_fmt=png&tp=webp&wxfrom=5&wx_lazy=1&wx_co=1" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">回到成都的<span style="color: black;">第1</span>晚,爸妈就说平时我不听话,<span style="color: black;">此刻</span>弄个痔疮严重了<span style="color: black;">晓得</span>回家了。我解释了下可能得的是直肠癌,爸妈不信,我<span style="color: black;">亦</span>不信。回到成都的<span style="color: black;">次日</span>,爸爸很早把我叫醒,那段时间<span style="color: black;">睡觉</span>质量<span style="color: black;">始终</span><span style="color: black;">欠好</span>,我不想起床,被骂了一顿还是起来洗漱完跟着去爸妈有熟人的一个医院,肛肠科的<span style="color: black;">专家</span>指检完大概清楚是直肠癌,把我妈我爸喊到一边说了一会,回来<span style="color: black;">她们</span>眼神<span style="color: black;">显著</span>变了,我忍着屁股的<span style="color: black;">病痛</span>坐在板凳上看着<span style="color: black;">她们</span>,“下午去更好的医院再<span style="color: black;">检测</span>一下,这边<span style="color: black;">亦</span>叫住院,<span style="color: black;">此刻</span>医院就想骗钱,做个<span style="color: black;">检测</span>还要排到几周后面去。”那时我还觉得“肠癌”<span style="color: black;">没</span>非<span style="color: black;">便是</span>切一段肠子,过段时间就好了。</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">下午在爸妈熟人的带领下门诊的<span style="color: black;">大夫</span>做完指检还是叫我住院,于是我在医院的日子<span style="color: black;">起始</span>了。<span style="color: black;">相关</span>系的好处还是很<span style="color: black;">显著</span>的,所有<span style="color: black;">检测</span>几天时间就安排好了(<span style="color: black;">亦</span>可能是住院的关系),肠镜取了活检。当天下午肚子胀气把我疼的遭不住,大半夜醒了就睡不着了。活检结果<span style="color: black;">火速</span>出来了,爸妈<span style="color: black;">亦</span><span style="color: black;">晓得</span>是什么还想不告诉我,但我早就想到这个可能性了。 又在医院躺了几天,<span style="color: black;">大夫</span>商量了治疗计划,给了两个<span style="color: black;">方法</span>,最<span style="color: black;">起始</span>是直接手术,<span style="color: black;">因为</span>病灶离肛门3cm直接<span style="color: black;">便是</span>永久造口术,这谁顶的住啊!我才22岁,不想<span style="color: black;">一生</span>挂个袋子!又在医院躺了两天,<span style="color: black;">亦</span>难受了两天,<span style="color: black;">不可</span>吃东西又<span style="color: black;">不可</span>喝水,靠输液维持体力,那两天我觉得这可能<span style="color: black;">便是</span>治疗最难受的日子吧。</p><img src="https://mmbiz.qpic.cn/mmbiz_png/hf1riaxJibO5B4aOOQ7l2pkA9QEA0cS5EsWuHwTf99M91F4kI8ARdvnfLGyLSISiapjzq9ibgcX2Z2Z8Ebn6icpqE4A/640?wx_fmt=png&tp=webp&wxfrom=5&wx_lazy=1&wx_co=1" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">第二个<span style="color: black;">方法</span>出来了是“术前辅助放化疗”,上午输了化疗药,<span style="color: black;">夜晚</span>输完就出院,<span style="color: black;">药品</span><span style="color: black;">熬煎</span><span style="color: black;">起始</span>了,神经毒素让我手脚遇冷就发麻。<span style="color: black;">此时</span>候我觉得这可能<span style="color: black;">便是</span>治疗最难受的日子吧。吃了两周的卡培他滨片,腹泻最<span style="color: black;">长期</span>为4天4夜,基本睡不着,坐在马桶上<span style="color: black;">能够</span>睡着,一躺床上马上又遭不住了,那几天厕所我是常驻居民。(腹泻和腹痛是我最难受的反应——<span style="color: black;">日前</span>为止)。三周化疗结束,放疗<span style="color: black;">起始</span>,卡培他滨要停药<span style="color: black;">1星期</span>,<span style="color: black;">第1</span>次放疗我是很紧张的,怕疼啊!放疗完结果屁事<span style="color: black;">无</span>,最多屁股疼一点。最难受的<span style="color: black;">便是</span>腹泻时去放疗,得忍住关紧闸门的<span style="color: black;">同期</span>躺着不动。放疗到13次,癌细胞<span style="color: black;">起始</span>溃烂,屁股锭子隐隐作痛,又痒又<span style="color: black;">不可</span>抓,真的很痛苦!</p>
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">2019年1月9日,我和妈吵架了,<span style="color: black;">由于</span>我妈太爱我了,我怕假如我真的离开了<span style="color: black;">她们</span>会难受,<span style="color: black;">此刻</span>还不如让<span style="color: black;">她们</span>讨厌我恨我,结果失败了……吵架的<span style="color: black;">原由</span>还是我的问题,我妈叫我喝水(当时小便<span style="color: black;">尤其</span>疼,<span style="color: black;">原由</span>我<span style="color: black;">亦</span>清楚,很可能是放疗<span style="color: black;">导致</span>的膀胱炎),我就不想喝,想过段时间不疼了再喝,结果我妈就<span style="color: black;">始终</span>念我说我不听话,当时疼得厉害<span style="color: black;">始终</span>不想说话,后面听烦了和我妈吵了一架。有时候真的<span style="color: black;">掌控</span>不了我的<span style="color: black;">心情</span>,感觉癌症带给我的不只是身体上的<span style="color: black;">熬煎</span>,还有心理上的愧疚。感觉我一个人拖累了<span style="color: black;">整家</span>,有时候真的很累,想过<span style="color: black;">自s</span>,后面一想跳楼,爸妈想着心慌,跳河又怕爸妈心头膈应,就<span style="color: black;">安泰</span>死可能来得痛快一点,我<span style="color: black;">亦</span>少受点<span style="color: black;">熬煎</span>。当然这个念头<span style="color: black;">始终</span>被掐灭,得了这个病我<span style="color: black;">晓得</span>了就算全世界的人不<span style="color: black;">期盼</span>我好,我爸妈都是<span style="color: black;">始终</span>支持我的人。<span style="color: black;">期盼</span>爸妈所有伤疼都由我来承担,毕竟我<span style="color: black;">亦</span>这个样子,虱子多了不怕痒。</p><img src="https://mmbiz.qpic.cn/mmbiz_png/hf1riaxJibO5B4aOOQ7l2pkA9QEA0cS5EsUzD8N68lmGr1icTFM65Ovk0C56WuyJ9khdBacF6KlUicFeQNTicjLEZUg/640?wx_fmt=png&tp=webp&wxfrom=5&wx_lazy=1&wx_co=1" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">此刻</span>有两件事情非常<span style="color: black;">懊悔</span>,<span style="color: black;">第1</span>是有症状去医院晚了,第二是得了半死不活的病真的难受,害了一家人。<span style="color: black;">全部</span>19年和20年就<span style="color: black;">这般</span>在放化疗、手术、术后放化疗的日子中煎熬着!记得去年十月去云南那边旅游了一圈,回来就肠梗阻,华西急症呆了<span style="color: black;">一月</span><span style="color: black;">上下</span>。这<span style="color: black;">一月</span>把我弄得很惨,<span style="color: black;">无</span>床位只能坐着输液,腿在那<span style="color: black;">一月</span>差不多废了。肺还有积液,那个实习的<span style="color: black;">大夫</span>给我做穿刺扎了三次才扎好,虽然打了麻药但我还是非常疼,<span style="color: black;">大夫</span>真的不<span style="color: black;">思虑</span>病人<span style="color: black;">状况</span>太讨厌了!肺水放了两三天就拔掉了。肠梗阻<span style="color: black;">不可</span>吃东西,胃管<span style="color: black;">始终</span>插着<span style="color: black;">尤其</span>难受,只能<span style="color: black;">始终</span>输营养液,后面还是转去肠胃外科切了大部分肠子。造口<span style="color: black;">亦</span>重新做了,小肠造口。身体里面的肠子都<span style="color: black;">不足</span>切了,下次要是再肠梗阻不<span style="color: black;">晓得</span>咋办,<span style="color: black;">不外</span>应该熬不到下次了。</p><img src="https://mmbiz.qpic.cn/mmbiz_png/hf1riaxJibO5B4aOOQ7l2pkA9QEA0cS5Es6ibuYhITgkdcyObmMjCduDxJKOvdVx7UwFgN0MoD5usYRkGo7hnsf4A/640?wx_fmt=png&tp=webp&wxfrom=5&wx_lazy=1&wx_co=1" style="width: 50%; margin-bottom: 20px;">
<p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;">小肠造口拉粑粑都是浠的,造口左边皮肤又凹进去的,<span style="color: black;">引起</span>造口袋经常漏,皮肤<span style="color: black;">亦</span>多次溃烂,难受,后面<span style="color: black;">晓得</span>是肿瘤堵住了肠子。<span style="color: black;">检测</span>结果:骨转移、肺转移、肝转移、盆腔转移、其他的忘了,<span style="color: black;">此刻</span>骨转移左腿<span style="color: black;">尤其</span>疼,<span style="color: black;">大夫</span>叫我平时卧床怕我<span style="color: black;">忽然</span>骨折了,左大腿肿了一次比我最胖那时还要粗!<span style="color: black;">此刻</span><span style="color: black;">仅有</span>八十多斤了,原来的我170斤,瘦了一个人!这几个月化疗结果<span style="color: black;">亦</span>不太好,<span style="color: black;">大夫</span><span style="color: black;">第1</span>次的<span style="color: black;">方法</span>用的贝伐单抗,肝上的还在长肿瘤,其他部位的倒是有点用就只能换<span style="color: black;">方法</span>了。本来要去放疗的,<span style="color: black;">然则</span>左腿<span style="color: black;">不可</span>平躺,平躺<span style="color: black;">呼气</span>困难只能放弃。<span style="color: black;">此刻</span>换的替吉奥吃,等着<span style="color: black;">不可</span>耐受了就没下个方案了。<span style="color: black;">大夫</span>叫我去重庆当小白鼠,我不想再折腾了,这次化疗要是<span style="color: black;">亦</span><span style="color: black;">无</span>了的话我就想吃吗啡过完后面的日子。又饿又不咋吃的下东西,想了想两个月时间,从活蹦乱跳到卧床不起还是有点难受的。<span style="color: black;">此刻</span>对我最好的安排<span style="color: black;">便是</span>睡一觉就再<span style="color: black;">亦</span>不会醒来。<span style="color: black;">每日</span>都很疼,吃曲马多止疼效果<span style="color: black;">亦</span><span style="color: black;">通常</span>,还让我变得傻乎乎的,<span style="color: black;">期盼</span>早点<span style="color: black;">能够</span><span style="color: black;">休憩</span>。</p>
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