4lqedz 发表于 2024-6-25 05:22:26

32 岁,直肠癌肝肺转移 :每一个疤痕,都是我的小红花


    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">本文作</span><span style="color: black;">者:清澈的笑</span></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">策划:GoEun</span></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">本文授权转载自 肿瘤时间(ID:oncolatdxy)</span></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">看完《送你一朵小红花》出来,正好是 2020 年 12 月 31 日 24:00,这是我与直肠癌抗争的第 5 年。</span></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">就像电影中的那句台词<span style="color: black;">同样</span>:「人不管有病没病,有胆没胆,活的是个精气神」,这 5 年来,我<span style="color: black;">始终</span>告诉自己,永远不为<span style="color: black;">无</span><span style="color: black;">出现</span>的事情担心难过,永远对<span style="color: black;">将来</span>充满爱和<span style="color: black;">期盼</span>。</span></p>0<span style="color: black;">1</span><strong style="color: blue;"><span style="color: black;">「天选之子」:32 岁,我病了</span></strong><span style="color: black;">时间回到 2015 年,那时候的我意气风发,大学毕业 10 年,<span style="color: black;">已然</span>留在上海扎了根,外企的工作<span style="color: black;">亦</span>挺顺利,看上去一切都很好。然而就像电影晃了一下镜头,我的人生从 12 月的<span style="color: black;">机构</span>体检之后,<span style="color: black;">出现</span>了猝不及防的改变。</span><span style="color: black;">我清楚的记得在体检中心做肝脏彩超的时候,<span style="color: black;">检测</span>的<span style="color: black;">大夫</span>涂了好几遍耦合剂,反复看了好几次,对我说:「你这个肝脏有个血管瘤,你要去医院复查一下。」</span><span style="color: black;"><span style="color: black;">针对</span> 10 年来病历本几乎空白的我<span style="color: black;">来讲</span>,「血管瘤」这三个字着实吓人,于是我急急忙忙找了个<span style="color: black;">次日</span>肝外科门诊有号的医院,火速挂上了号,或许是天意,这个<span style="color: black;">第1</span>次看病的医院——上海某三甲医院,<span style="color: black;">成为了</span>我这 5 年来<span style="color: black;">持续</span>进进出出的医院。</span>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://mmbiz.qpic.cn/mmbiz_jpg/m5Ugs1ZcU7GLM8R5REialQ1YcibHVPcASP8PlzgravahbNDRPOCboRCqYckVzWcnX8ibp4hpuiczoKmULIRhcMicebg/640?wx_fmt=jpeg&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">5 年前,医院<span style="color: black;">周边</span>的天桥 | 作者供图</span></p><span style="color: black;">之后<span style="color: black;">便是</span>「一顿操作猛如虎」:肿瘤标志物,肠镜,CT, 核磁共振,PET-CT……<span style="color: black;">检测</span>结果<span style="color: black;">亦</span>着实「值回<span style="color: black;">检测</span>费」:癌胚抗原 26.5,距肛门 5-8 cm 见环 2/3 腔肿块,直肠腺癌,肠周、骶前转移,肝右后叶及尾状叶转移,右肺上叶前段转移。</span><span style="color: black;">这怎么看都像是个病入膏肓的晚期啊!</span><span style="color: black;">确诊的那天,<span style="color: black;">大夫</span>说我是直肠癌肝肺转移,我竟然丝毫<span style="color: black;">无</span>排斥这个结果的到来,就像很自然地听到一个平淡的<span style="color: black;">信息</span>那样:哦,我<span style="color: black;">晓得</span>了。下午 5 点,在医院<span style="color: black;">已然</span>冷清的门诊大厅,我一个人坐在空荡荡的椅子上,觉得屁股有点凉,低着头,流下了<span style="color: black;">患病</span>后屈指可数的几滴眼泪。怎么说<span style="color: black;">亦</span>是癌症,几滴热泪,聊表敬意吧。</span>0<span style="color: black;">2</span><strong style="color: blue;"><span style="color: black;">「战斗」<span style="color: black;">起始</span>了,我准备好了吗?</span></strong><span style="color: black;">经过医院结直肠外科的多学科会诊,<span style="color: black;">思虑</span>到我的直肠原发灶前壁与子宫贴近,肠周多发淋巴结肿大,加上肝内<span style="color: black;">最少</span> 6 枚病灶,尾叶切除<span style="color: black;">亦</span>有难度,暂时没办法手术,<span style="color: black;">大夫</span><span style="color: black;">意见</span>我先进行靶向加化疗,我的基因检测结果<span style="color: black;">表示</span> KRAS,NRAS,BFAF 均为野生型,<span style="color: black;">因此</span>给我上了西妥昔单抗加 FOLFOX <span style="color: black;">方法</span>。</span><span style="color: black;">没时间想太多,马上就<span style="color: black;">起始</span>了化疗,我告诉自己,不管以前听到化疗有多可怕,我<span style="color: black;">必须</span>经历的一切,我都要自己去感受、去定义。来吧,这场和肿瘤的「战斗」,我<span style="color: black;">必定</span>要赢!</span><img src="https://mmbiz.qpic.cn/mmbiz_jpg/m5Ugs1ZcU7GLM8R5REialQ1YcibHVPcASPXb4Qyh3ibibsfHsyIYfbEEV5I2ibVe7zXuOluAnIP7riaa10cs8yOlrnPw/640?wx_fmt=jpeg&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"><span style="color: black;">那时给自己买的 5 年日记本,<span style="color: black;">由于</span>我很好奇,5 年后的自己会是<span style="color: black;">怎么样</span>的?可是<span style="color: black;">没</span>论我那时在<span style="color: black;">或</span>不在,都<span style="color: black;">无</span>关系,胸口挂个勇字的我,<span style="color: black;">必定</span>会尽力,<span style="color: black;">必定</span>!<span style="color: black;">&nbsp;| 作者供图</span></span><span style="color: black;">化疗要吐啊、肠绞痛啊、<span style="color: black;">头昏</span>难受啊什么的都是常规操作,只是这个靶向药西妥昔注射液真的是摧毁了我白嫩的皮肤,满脸满头的痘痘,又疼又痒,把我好好的白雪公主变<span style="color: black;">成为了</span>王二麻子!</span><span style="color: black;"><span style="color: black;">然则</span><span style="color: black;">大夫</span>说皮肤反应程度是疗效的<span style="color: black;">表现</span>,嗐,那咱<span style="color: black;">亦</span>要格局大一点是不是?还好过了刚<span style="color: black;">起始</span>反应最剧烈的一段时间,慢慢地皮肤症状又<span style="color: black;">起始</span>缓和了,正赶上过年的时候, 我又开开心心地和好<span style="color: black;">伴侣</span>们<span style="color: black;">一块</span>臭美了。</span><span style="color: black;">总能在困难里找到快乐,这算是我的<span style="color: black;">天分</span>吧。</span>0<span style="color: black;">3</span><span style="color: black;"><strong style="color: blue;">峰回路转,我<span style="color: black;">能够</span>手术啦!</strong></span><span style="color: black;">过完年没多久,我的四次靶向加化疗<span style="color: black;">亦</span>做好了,像我当时的<span style="color: black;">状况</span>,每四次化疗就算一个小节点,除了平时每两周<span style="color: black;">起始</span>化疗前要抽三管血<span style="color: black;">检测</span>血常规、肝肾功能和肿瘤指标物之外,每两个月就要做胸部、腹部<span style="color: black;">加强</span> CT 和盆腔核磁共振,<span style="color: black;">瞧瞧</span>病灶的<span style="color: black;">状况</span>。</span><span style="color: black;">化疗两次以后,我的癌胚抗原从 26.5 降到了 8,<span style="color: black;">亦</span>做了确诊以后的<span style="color: black;">第1</span>次全面影像学大<span style="color: black;">检测</span>,做好后<span style="color: black;">火速</span>拿到了结果,<span style="color: black;">瞧瞧</span>报告上的文字描述,我扔到了一边。</span><span style="color: black;">其实<span style="color: black;">患病</span>这么久了,<span style="color: black;">没</span>论是我,还是认识的病友,总会碰上<span style="color: black;">这般</span>的<span style="color: black;">状况</span>:做好<span style="color: black;">检测</span><span style="color: black;">第1</span>时间拿到报告,那时候距离看<span style="color: black;">大夫</span>门诊<span style="color: black;">通常</span>都会有几天的间隔时间,大<span style="color: black;">都数</span>人都会对着报告单胡思乱想,<span style="color: black;">而后</span>在网上拼命搜索,其实<span style="color: black;">这般</span>得到的<span style="color: black;">常常</span>都是不太准确<span style="color: black;">或</span>和<span style="color: black;">自己</span><span style="color: black;">相关</span>不大的信息,个人<span style="color: black;">心情</span><span style="color: black;">亦</span>会<span style="color: black;">因此呢</span>陷入焦虑,事后再<span style="color: black;">瞧瞧</span>,真的都是<span style="color: black;">没</span>用之功。</span><span style="color: black;"><span style="color: black;">因此</span>遇到这种<span style="color: black;">状况</span>,我都是先放一边,反正<span style="color: black;">没</span>论结果是好是坏,都还没来呢,糟糕的心情反而影响了当下的生活,简直太不划算!</span><span style="color: black;"><span style="color: black;">因为</span>我的<span style="color: black;">状况</span>比较<span style="color: black;">繁杂</span>,<span style="color: black;">大夫</span>让我带着所有的<span style="color: black;">检测</span>报告参加了医院结直肠外科的多学科会诊,看来西妥昔单抗和 Folfox 组合的化疗<span style="color: black;">方法</span>对我<span style="color: black;">来讲</span>还是非常有效的,我听到<span style="color: black;">大夫</span>们讨论说我直肠上的病灶<span style="color: black;">显著</span>缩小了,肝上原来<span style="color: black;">最少</span> 6 枚的病灶<span style="color: black;">亦</span>减少至 3 枚,肺上<span style="color: black;">本来</span>就 1 个的病灶<span style="color: black;">亦</span>得到了<span style="color: black;">控制</span>。</span><span style="color: black;">这次会诊给我带来了<span style="color: black;">期盼</span>,以至于<span style="color: black;">此刻</span>我依然能够回想起我的主治<span style="color: black;">大夫</span>——结直肠外科<span style="color: black;">专家</span>许教授向参加会诊的<span style="color: black;">大夫</span>们介绍完我的<span style="color: black;">状况</span>后,向<span style="color: black;">大众</span>指了指我,说,你们看,她还这么<span style="color: black;">青年</span>,<span style="color: black;">咱们</span>就<span style="color: black;">一块</span><span style="color: black;">奋斗</span>,一次手术帮她把肠、肝、肺上的病灶都切掉吧!</span><span style="color: black;">幸福来得就是这么<span style="color: black;">忽然</span>,我<span style="color: black;">最终</span><span style="color: black;">能够</span>手术了!</span>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://mmbiz.qpic.cn/mmbiz_jpg/m5Ugs1ZcU7GLM8R5REialQ1YcibHVPcASPWlBFOGVw1dYrQWSheVs2et8KdiaetAwcLnib3sju9RdeubJQkwys56zw/640?wx_fmt=jpeg&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"><span style="color: black;">手术前改编了<span style="color: black;">「<span style="color: black;"><span style="color: black;">奥妙</span>能力</span><span style="color: black;">歌</span>」的歌词</span>,用来鼓励自己&nbsp;| 作者供图</span></p><span style="color: black;">2016 年 3 月 14 日,是我的「大日子」,大约早上十点多,我躺上了手术室的小推床。<span style="color: black;">据述</span>我是全国第二例达芬奇<span style="color: black;">设备</span>人肠肝肺同切的病人(<span style="color: black;">第1</span>例<span style="color: black;">亦</span>在这个医院),由结直肠外科,肝外科,胸外科三科专家联合为我一次性切除肠肝肺的病灶,我<span style="color: black;">不仅</span>不紧张,还觉得挺光荣,在手术室看着<span style="color: black;">麻木</span>师的笑脸,渐渐失去了<span style="color: black;">认识</span>……</span><span style="color: black;">醒过来<span style="color: black;">已然</span>是<span style="color: black;">半夜</span>十二点,原来我的手术从<span style="color: black;">白日</span>到黑夜,加上<span style="color: black;">麻木</span>和苏醒的时间,整整过了十二个小时!迷迷糊糊睁开眼睛,<span style="color: black;">好似</span>是在电梯里,好几个人围着我,看见我醒了,<span style="color: black;">她们</span>说:她醒了她醒了!我张了张嘴,想说点什么,却<span style="color: black;">发掘</span>自己的嘴里插了一根管子,什么都说不出来。旁边的人<span style="color: black;">好似</span>看出了我的疑惑:「你的手术挺顺利的,<span style="color: black;">夜晚</span>十点多就做好了,你是<span style="color: black;">麻木</span>刚醒,给你插了管,<span style="color: black;">因此</span>你说不出话」。我躺在小床上,感觉被推过了好几个长长的走廊,又转了好多个弯,最后进了重症监护室。</span><img src="https://mmbiz.qpic.cn/mmbiz_jpg/m5Ugs1ZcU7GLM8R5REialQ1YcibHVPcASP4EJmibejF1aI4BWVvgPCpogKW2SP4MXicC5tK3Nxb0nc8A2OTAJytTibQ/640?wx_fmt=jpeg&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"><span style="color: black;">医院里深长而空旷的走廊&nbsp;| 作者供图</span><span style="color: black;">那一晚我硬生生瞪着眼睛一点没睡着,我能听到<span style="color: black;">周边</span>所有的声音:<span style="color: black;">tel</span>铃响,新病人推进来,还有离我不远的病床上一位老人<span style="color: black;">逝去</span>了……</span>0<span style="color: black;">4</span><strong style="color: blue;"><span style="color: black;">术后住院的日子,痛并快乐着……</span></strong><span style="color: black;">以前觉得天大地大,手术最大,可是手术结束了才<span style="color: black;">发掘</span>,<span style="color: black;">针对</span><span style="color: black;">全部</span>漫长的治疗过程而言,手术虽然很<span style="color: black;">要紧</span>,但它绝不是结束,只是个浓墨重彩的开场。</span><span style="color: black;"><span style="color: black;">此刻</span>还能想起那时住院的难熬细节:十几天滴米未进,天天只靠着输液和橙汁维持;手术后的<span style="color: black;">次日</span>,为了防止肠黏连和加快恢复,<span style="color: black;">大夫</span><span style="color: black;">需求</span><span style="color: black;">每日</span>下床走三到五<span style="color: black;">千米</span>,那时候身上还挂满了引流管和输液袋,人<span style="color: black;">亦</span>很虚弱,真的只能<span style="color: black;">循序渐进</span>地往前挪;当时肛门<span style="color: black;">亦</span>接了一根引流管,应该是缝在肛门口的皮肤上,可是有一次却被打扫的阿姨在叠被子的时候不小心拉了一下,那块皮肤<span style="color: black;">亦</span>被扯掉了<span style="color: black;">一起</span>,当时我就疼得哭了出来……</span>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://mmbiz.qpic.cn/mmbiz_jpg/m5Ugs1ZcU7GLM8R5REialQ1YcibHVPcASPpWNibBvNKK26vgfwIH0jDv5r6IsuibzKnO9sAxEuJjObRJgqDs7abolw/640?wx_fmt=jpeg&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;"><span style="color: black;">第1</span>次住院,病房里的日日夜夜&nbsp;| 作者供图</span><span style="color: black;">可<span style="color: black;">此刻</span>我的脑海里闪现最多的,是隔壁床八十多岁的老奶奶一家人其乐融融的画面;是病号们<span style="color: black;">每日</span>早上坐得笔直、像小学生期待春游那般,等待着<span style="color: black;">大夫</span>来查房;是每次在病区长长的走廊里看到墙上写的那句「You can create your own miracle」;是我戴着耳机循环听老狼的《虎口脱险》在长廊里来回地走圈;是我站在十一楼的窗边,看着外面的世界……</span><span style="color: black;">相比于<span style="color: black;">哪些</span>身体上的痛苦,我更愿意想起这段过程中<span style="color: black;">没</span>数个独一<span style="color: black;">没</span>二的瞬间,我<span style="color: black;">叫作</span>「它们」是我的一段「人生经历」。</span>0<span style="color: black;">5</span><strong style="color: blue;"><span style="color: black;">跌入谷底,我复发了</span></strong><span style="color: black;">不知不觉,两年过去了,<span style="color: black;">好似</span>没什么变化,我还是<span style="color: black;">始终</span>做着维持治疗,<span style="color: black;">亦</span>保持着每三个月做一次全面<span style="color: black;">检测</span>。2018 年 1 月,例行复查,肝左叶<span style="color: black;">显现</span>了 10毫米的转移灶,复发这件事,终究还是<span style="color: black;">出现</span>了。</span><span style="color: black;">医院的化疗是在西院区一楼的门诊输液室,以前我经常坐在靠窗的那排座位,隔着半开的玻璃窗,外面的阳光很灿烂,还有郁郁葱葱的一排树随风摇曳,来来<span style="color: black;">常常</span>的人群一晃而过。只是这么一面墙,就把我和<span style="color: black;">她们</span>隔在了两个世界。那时我觉得,好<span style="color: black;">期盼</span>有一天我<span style="color: black;">不消</span>再来这个化疗的<span style="color: black;">地区</span>,什么治疗都<span style="color: black;">不消</span>做了,<span style="color: black;">能够</span>和<span style="color: black;">哪些</span>普普通通的人<span style="color: black;">同样</span>,开开心心地走在太阳下。</span>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://mmbiz.qpic.cn/mmbiz_jpg/m5Ugs1ZcU7GLM8R5REialQ1YcibHVPcASPIstllXhibUNd5q4Yg4ibXJd42cxQEj0lMGNcRkRakzzAOjk6Jvo9Tr7g/640?wx_fmt=jpeg&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"><span style="color: black;">我化疗的<span style="color: black;">地区</span>,西院区门诊输液室&nbsp;| 作者供图</span></p><span style="color: black;">这次复发,让我觉得我<span style="color: black;">好似</span>是一个攀登者,本来<span style="color: black;">已然</span>爬到半山腰了,却又一次被拉回谷底。可我<span style="color: black;">不可</span><span style="color: black;">懊丧</span>,<span style="color: black;">调节</span>好<span style="color: black;">心理</span>赶紧挂了第一次为我做肝部手术的肝外科王教授的号,他说,才 1厘米<span style="color: black;">罢了</span>,腹腔镜下切除就好了,小手术。</span><span style="color: black;">我不怕吃苦,只怕<span style="color: black;">无</span>办法,既然<span style="color: black;">大夫</span>说了小手术,那就上吧!</span><span style="color: black;">手术真的非常顺利,只用了一个小时。记得当时我在复苏室里醒来时正好是<span style="color: black;">晌午</span>,冬天的阳光洒进房间,恍惚间,我以为自己只是睡了个懒觉。</span><span style="color: black;">经历过<span style="color: black;">第1</span>次的大手术,这个小手术对我<span style="color: black;">来讲</span>真的「舒服」太多了,术后<span style="color: black;">次日</span>就能吃东西了!<span style="color: black;">然则</span>,我又要重新<span style="color: black;">起始</span>大化疗,依旧是最<span style="color: black;">起始</span>的<span style="color: black;">方法</span>:西妥昔单抗加 Folfox,我只能<span style="color: black;">奋斗</span>说服自己忘记之前<span style="color: black;">哪些</span>生理上的排斥和不适,<span style="color: black;">起始</span>再一轮的战斗。</span>0<span style="color: black;">6</span><strong style="color: blue;"><span style="color: black;">屋漏偏逢连阴雨,复发<span style="color: black;">不足</span>,耐药来凑</span></strong><span style="color: black;">距离肝左叶手术三个月不到、大化疗四次之后,<span style="color: black;">检测</span><span style="color: black;">表示</span>:肝右叶<span style="color: black;">显现</span>了多个新发病灶。这<span style="color: black;">寓意</span>着正在进行的化疗<span style="color: black;">方法</span><span style="color: black;">已然</span>对我<span style="color: black;">没</span>效了,我产生了耐药。</span><span style="color: black;">怎么办?换药!</span><span style="color: black;"><span style="color: black;">大夫</span>决定让我改用西妥昔单抗加 Folfori <span style="color: black;">方法</span>,<span style="color: black;">瞧瞧</span>有<span style="color: black;">无</span>效果,Folfori 和 Folfox 的区别就在于奥沙利铂换<span style="color: black;">成为了</span>伊利替康。<span style="color: black;">亦</span>许<span style="color: black;">每一个</span>人的感受不同吧,就我个人而言,<span style="color: black;">倘若</span>满分是 10 分的话,之前奥沙利铂的痛苦指数大概<span style="color: black;">能够</span>打 6-7 分,而伊利替康,我给它打 9.5 分!</span><span style="color: black;">我吐得昏天暗地,脑袋瓜又晕又沉,还<span style="color: black;">伴同</span>着肠绞痛,化疗的那几天,说是度日如年<span style="color: black;">亦</span>不为过。更可怕的是,我的头发<span style="color: black;">起始</span><span style="color: black;">许多</span><span style="color: black;">许多</span>地掉,我这么爱臭美,怎么能秃头呢?于是我剪短了头发,可仍然<span style="color: black;">没</span>法减缓掉发的速度,于是我又去买了假发片,最后,还是买了整顶假发。我意<span style="color: black;">外区</span><span style="color: black;">发掘</span>,这假发比自己的发质还好,很是不错呢。</span>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="https://mmbiz.qpic.cn/mmbiz_jpg/m5Ugs1ZcU7GLM8R5REialQ1YcibHVPcASPy6WibEzQtGaEyGEPgUCVB1etyHJVm6uOWtibwdDd38yd5QibTQrcGVF4g/640?wx_fmt=jpeg&amp;tp=webp&amp;wxfrom=5&amp;wx_lazy=1&amp;wx_co=1" style="width: 50%; margin-bottom: 20px;"></p>0<span style="color: black;">7</span><span style="color: black;"><strong style="color: blue;">一鼓作气,熬过射频消融<span style="color: black;">便是</span>胜利!</strong></span><span style="color: black;">顶着小光头挺过 10 次新化疗<span style="color: black;">方法</span>之后,肝部病灶只剩两个了,新<span style="color: black;">方法</span>可谓卓有成效!</span><span style="color: black;"><span style="color: black;">大夫</span>说,咱们快刀斩乱麻,射频消融把病灶都消灭!</span><span style="color: black;">相比于正儿八经的手术,射频消融简直是老干部住院疗养嘛,连<span style="color: black;">麻木</span>都只是半麻。<span style="color: black;">不外</span>老实说,手术过程中那个粗粗的针管扎进腹部<span style="color: black;">起始</span>工作的时候,还是有些痛感的。<span style="color: black;">然则</span>帮我手术的肝内科陈<span style="color: black;">大夫</span><span style="color: black;">便是</span>能<span style="color: black;">非常</span>精确地把握好这个分寸,每当我憋到接近极限,想说快要不行了的时候,她就<span style="color: black;">周期</span>性地停止了,<span style="color: black;">而后</span>重新<span style="color: black;">起始</span>下一次操作。这一来二去地,<span style="color: black;">全部</span>射频消融就在安静祥和的气氛中完美落幕。</span><span style="color: black;">这次手术后只住院了三天,出院之后,我<span style="color: black;">便是</span><span style="color: black;">没</span>瘤状态了!<span style="color: black;">大夫</span>说我自此<span style="color: black;">能够</span>口服化疗药,只<span style="color: black;">必须</span><span style="color: black;">定时</span>去医院开药和<span style="color: black;">检测</span>就行。</span><span style="color: black;">天呐,我简直要敲锣打鼓庆祝一番了!虽然口服的卡培他滨<span style="color: black;">亦</span>还是有<span style="color: black;">有些</span>不良反应,<span style="color: black;">然则</span><span style="color: black;">针对</span>经历过<span style="color: black;">那样</span>多次化疗的人<span style="color: black;">来讲</span>,我真的只想说四个字,那<span style="color: black;">便是</span>「都是浮云」!</span><span style="color: black;">我开心地投入到工作中去,几乎<span style="color: black;">能够</span>全勤去上班了,<span style="color: black;">亦</span><span style="color: black;">起始</span>了我的「马甲线计划」,<span style="color: black;">每日</span><span style="color: black;">保持</span><span style="color: black;">熬炼</span>身体和健康<span style="color: black;">膳食</span>,我想在抗癌满五年的时候,送给自己一份最好的礼物:一个更好的自己。</span><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><span style="color: black;"><span style="color: black;">保持</span><span style="color: black;">熬炼</span>,<span style="color: black;">起始</span>我的「马甲线计划」&nbsp;| 作者供图</span><span style="color: black;">心里有了<span style="color: black;">目的</span>和<span style="color: black;">巴望</span>,每一天都是<span style="color: black;">没</span>比<span style="color: black;">新鲜</span>,看着镜中越来越<span style="color: black;">漂亮</span>的身影,我开心极了。</span>0<span style="color: black;">8</span><strong style="color: blue;"><span style="color: black;">又来?打不倒我的只会让我更强</span></strong><span style="color: black;">时间来到了 2020 年,一场疫情改变了<span style="color: black;">非常多</span>人的生活轨迹,我却在天天宅家的日子里找到了平衡和乐趣。<span style="color: black;">每日</span>规律的<span style="color: black;">膳食</span>和<span style="color: black;">熬炼</span>,准点打开电脑工作,还<span style="color: black;">能够</span>插空做许多自己<span style="color: black;">爱好</span>的事情,多么<span style="color: black;">期盼</span>日子就<span style="color: black;">这般</span>美好地过下去。</span><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><span style="color: black;"><span style="color: black;">熬炼</span>初见成效,我爱运动,活力满满&nbsp;| 作者供图</span><span style="color: black;">其实从一年前<span style="color: black;">起始</span>,我复查时就<span style="color: black;">发掘</span>肺部有一个 4毫米的小结节,只<span style="color: black;">不外</span><span style="color: black;">针对</span>见过大场面的我,觉得小结节很正常,<span style="color: black;">不必</span>太当回事,想太多反而影响心情。</span><span style="color: black;"><span style="color: black;">然则</span> 7 月份的<span style="color: black;">检测</span>结果<span style="color: black;">表示</span>:这个肺上的小结节<span style="color: black;">已然</span>长到 10毫米了,来者不善呐!保险起见,<span style="color: black;">大夫</span>又让我做了一个 PET-CT 全身扫描,结果<span style="color: black;">发掘</span>除了肺上的病灶,我的左侧骶前淋巴结<span style="color: black;">亦</span>有多发转移。</span><span style="color: black;">唉,我的「马甲线计划」只能暂停了。<span style="color: black;">无</span>退路可言,我<span style="color: black;">必要</span>迎难而上!</span><span style="color: black;">我又一次参加了结直肠外科的 MDT 多学科会诊,这次结直肠外科、肝外科、胸外科、内科、放射科还有介入科等科室的专家们都来了,<span style="color: black;">最后</span>,专家们<span style="color: black;">意见</span>我先把肺部的小结节<span style="color: black;">经过</span>微创手术处理掉,术后再针对骶前淋巴结进行 TOMO 放疗,<span style="color: black;">同期</span>恢复输液化疗,这次的化疗<span style="color: black;">方法</span>是贝伐单抗加氟尿嘧啶。</span><span style="color: black;">码了这么多字,<span style="color: black;">最终</span>写到了今天。</span><span style="color: black;">在 7 月份肺部手术之后,我<span style="color: black;">已然</span>进行完了 20 次TOMO放疗,<span style="color: black;">另一</span>,术后三个月的首次大<span style="color: black;">检测</span>顺利<span style="color: black;">经过</span>了,第 11 次化疗<span style="color: black;">亦</span><span style="color: black;">刚才</span>结束,下个月又要迎来术后的第二次大<span style="color: black;">检测</span>,<span style="color: black;">期盼</span>一切顺利。</span>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p><span style="color: black;"><span style="color: black;">近期</span>一次<span style="color: black;">检测</span>结果&nbsp;| 作者供图</span><span style="color: black;">生活还在继续,阳光依旧灿烂,<span style="color: black;">期盼</span>总是要有的,不是吗?</span><strong style="color: blue;"><span style="color: black;">写在结尾的话</span></strong><span style="color: black;">转眼<span style="color: black;">已然</span>抗癌 5 年了,<span style="color: black;">亦</span>算阶段性的小胜利吧。其实我<span style="color: black;">亦</span>抱怨过,消沉过,命运怎么能可着劲折腾我呢?我明明生活积极向上,待人亲切友善,<span style="color: black;">为何</span>就要遇上这种事情?!可是<span style="color: black;">倘若</span>陷入<span style="color: black;">这般</span>的自我疑问就<span style="color: black;">不消</span>过了,命运不会给你答案,它把<span style="color: black;">困难</span>抛给你,你就好好接住,拿个<span style="color: black;">美丽</span>的答卷出来。</span><span style="color: black;">最后,<span style="color: black;">患病</span>这么久,总会遇到<span style="color: black;">非常多</span><span style="color: black;">患病</span>的<span style="color: black;">伴侣</span>问我<span style="color: black;">非常多</span>问题,我总结了几条普适的原则和<span style="color: black;">大众</span><span style="color: black;">一块</span>分享:</span><span style="color: black;"><span style="color: black;">发掘</span>病情,咱们不要慌,选对医院和<span style="color: black;">大夫</span>,积极<span style="color: black;">协同</span>治疗;</span><span style="color: black;">保持<span style="color: black;">阳光</span>的心情,<span style="color: black;">能够</span>总结经验教训,<span style="color: black;">然则</span>不要为<span style="color: black;">已然</span><span style="color: black;">出现</span>的事情<span style="color: black;">懊悔</span>,更不要钻牛角尖;活在当下,多运动多<span style="color: black;">熬炼</span>,<span style="color: black;">尽可能</span>吃得健康点,有<span style="color: black;">前提</span><span style="color: black;">能够</span>出去旅游旅游,看的世界大了,心<span style="color: black;">亦</span>会变得更开阔;</span><span style="color: black;">遇到病情反复,要学会<span style="color: black;">调节</span>和摆正自己的<span style="color: black;">心理</span>,不被疾病战胜,成功的<span style="color: black;">便是</span>你,咱拼的<span style="color: black;">便是</span>个耐力!</span><span style="color: black;">力所能及地承担<span style="color: black;">必定</span>的工作和社会<span style="color: black;">或</span>家庭职责,<span style="color: black;">没</span>论<span style="color: black;">体积</span>。<span style="color: black;">患病</span>必然会改变一个人的生活轨迹,<span style="color: black;">然则</span>生活<span style="color: black;">必要</span>继续,不要脱离群体;</span><span style="color: black;">最后,<span style="color: black;">亦</span><span style="color: black;">无</span>最后了,人生或短或长,<span style="color: black;">奋斗</span>了才不留遗憾。</span><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><span style="color: black;"><span style="color: black;">5 年后,<span style="color: black;">天桥<span style="color: black;">成为了</span>我<span style="color: black;">没</span>数次经过的<span style="color: black;">地区</span>,只是</span></span>医院的指示牌拆掉了&nbsp;| 作者供图</span><span style="color: black;">衷心感谢医院结直肠外科的许教授、韦教授和<span style="color: black;">她们</span>的团队,还有其他可爱的医护人员,我会继续加油,你们<span style="color: black;">亦</span>是!</span><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;">
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><strong style="color: blue;">审核专家&nbsp; 许剑民&nbsp; 教授 <span style="color: black;">专家</span>医师</strong></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">复旦大学<span style="color: black;">附庸</span>中山医院结直肠外科<span style="color: black;">专家</span>、结直肠癌中心<span style="color: black;">专家</span>、普外科副<span style="color: black;">专家</span></span></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">作</span><span style="color: black;">者:清澈的笑</span></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">策划:GoEun</span></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><span style="color: black;">本文授权转载自肿瘤时间(ID:on</span><span style="color: black;">colatd</span><span style="color: black;">xy)二次转载或合作请联系yinqihang@dxy.cn。</span></p>
    <p style="font-size: 16px; color: black; line-height: 40px; text-align: left; margin-bottom: 15px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"><img src="data:image/svg+xml,%3C%3Fxml version=1.0 encoding=UTF-8%3F%3E%3Csvg width=1px height=1px viewBox=0 0 1 1 version=1.1 xmlns=http://www.w3.org/2000/svg xmlns:xlink=http://www.w3.org/1999/xlink%3E%3Ctitle%3E%3C/title%3E%3Cg stroke=none stroke-width=1 fill=none fill-rule=evenodd fill-opacity=0%3E%3Cg transform=translate(-249.000000, -126.000000) fill=%23FFFFFF%3E%3Crect x=249 y=126 width=1 height=1%3E%3C/rect%3E%3C/g%3E%3C/g%3E%3C/svg%3E" style="width: 50%; margin-bottom: 20px;"></p>




啊呀呀 发表于 2024-8-31 02:40:32

认真阅读了楼主的帖子,非常有益。

4lqedz 发表于 2024-10-19 23:51:34

谢谢、感谢、感恩、辛苦了、有你真好等。
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